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Who are you caring for?
Which best describes their mobility?
How well are they maintaining their hygiene?
How are they managing their medications?
Does their living environment pose any safety concerns?
Fall risks, spoiled food, or other threats to wellbeing
Are they experiencing any memory loss?
Which best describes your loved one's social life?
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By proceeding, I agree that I understand the following disclosures:
I. How We Work in Washington. Based on your preferences, we provide you with information about one or more of our contracted senior living providers ("Participating Communities") and provide your Senior Living Care Information to Participating Communities. The Participating Communities may contact you directly regarding their services. APFM does not endorse or recommend any provider. It is your sole responsibility to select the appropriate care for yourself or your loved one. We work with both you and the Participating Communities in your search. We do not permit our Advisors to have an ownership interest in Participating Communities.
II. How We Are Paid. We do not charge you any fee – we are paid by the Participating Communities. Some Participating Communities pay us a percentage of the first month's standard rate for the rent and care services you select. We invoice these fees after the senior moves in.
III. When We Tour. APFM tours certain Participating Communities in Washington (typically more in metropolitan areas than in rural areas.) During the 12 month period prior to December 31, 2017, we toured 86.2% of Participating Communities with capacity for 20 or more residents.
IV. No Obligation or Commitment. You have no obligation to use or to continue to use our services. Because you pay no fee to us, you will never need to ask for a refund.
V. Complaints. Please contact our Family Feedback Line at (866) 584-7340 or ConsumerFeedback@aplaceformom.com to report any complaint. Consumers have many avenues to address a dispute with any referral service company, including the right to file a complaint with the Attorney General's office at: Consumer Protection Division, 800 5th Avenue, Ste. 2000, Seattle, 98104 or 800-551-4636.
VI. No Waiver of Your Rights. APFM does not (and may not) require or even ask consumers seeking senior housing or care services in Washington State to sign waivers of liability for losses of personal property or injury or to sign waivers of any rights established under law.I agree that: A.I authorize A Place For Mom ("APFM") to collect certain personal and contact detail information, as well as relevant health care information about me or from me about the senior family member or relative I am assisting ("Senior Living Care Information"). B.APFM may provide information to me electronically. My electronic signature on agreements and documents has the same effect as if I signed them in ink. C.APFM may send all communications to me electronically via e-mail or by access to an APFM web site. D.If I want a paper copy, I can print a copy of the Disclosures or download the Disclosures for my records. E.This E-Sign Acknowledgement and Authorization applies to these Disclosures and all future Disclosures related to APFM's services, unless I revoke my authorization. You may revoke this authorization in writing at any time (except where we have already disclosed information before receiving your revocation.) This authorization will expire after one year. F.You consent to APFM's reaching out to you using a phone system than can auto-dial numbers (we miss rotary phones, too!), but this consent is not required to use our service.
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Mostly Independent
Your loved one may not require home care or assisted living services at this time. However, continue to monitor their condition for changes and consider occasional in-home care services for help as needed.
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Ditto to what JoAnn answered. I know 2 men who have it. One was in his 80s and he didn't get the dementia part until close to the end of his life but he had PD for probably 8-10 yrs. My friend who was diagnosed at a younger age, like 65 and very healthy otherwise, is progressing more rapidly, even with excellent healthcare. He's about 2 years into it (from diagnosis so he may have had it longer but I doubt it) and he is beginning to have some cognitive issues. So, very different for each person.
As with any other disease, Parkinson's is as individual to a person, as unique, as his or her own fingerprint. People can give you averages. They mean nothing. Your own MD is the best one to "guess" at a longevity prognosis, and that MD will almost certainly tell you that this is ONLY a guess. So many things figure into an answer. The disease may progress more quickly or more slowly in a person. The general health of the person may figure. There is the random occurrences of which systems are affected, and how badly. There is the level of care. There determination or lack of determination of the person or work with rehab in order to remain more or less active. All of these factors, and so many more figure in the final outcome. Wish we could help on this one. I am afraid you are left with the very unsatisfactory guesses in terms of averages.
I spoke to my mom’s neurologist about her Parkinson’s disease.
He informed me that Parkinson’s disease effects everyone differently.
It also depends on when a person is diagnosed.
He also told me that when a person is diagnosed younger in life the disease progresses more rapidly.
My mom was diagnosed later in life so the disease progressed at a much slower pace.
It’s a brutal disease that becomes challenging to live with as it progresses.
Some people have dementia with Parkinson’s disease and others don’t.
Some like my mom develop only mild dementia at a very late stage.
My uncle lived to be 96 with his Parkinson’s disease. He suffered terribly the last few years of his life but his was slower progressing like my mom. He had no dementia.
Mom is 95 and is in a hospice house.
She can no longer turn herself over in bed. She is completely bed bound.
She doesn’t eat much but she has never been a big eater. She is extremely thin.
I am incredibly grateful to her nurses and caregivers. They are incredibly compassionate and take wonderful care of her.
They go above and beyond to keep her comfortable.
Amazingly, she hasn’t needed any pain meds.
She only takes her Sinamet and a very low dose of Seroquel.
Due to Covid only two people can visit at the time but I FaceTime with others so mom gets to see them. Mom loves that. My daughter in Denver FaceTimes with her all the time. My godson does too. Lots of nieces, nephews and cousins do too.
I do take comfort knowing that mom is receiving excellent care.
She would never be able to receive the care that she is receiving at home like she is there.
They are equipped with a staff to care for patients 24/7.
This place is remarkable because there are only three beds.
They love their job and it shows in their care.
Anyone who has done caregiving absolutely knows what a tough job it is!
My heart goes out to all hospice caregivers.
Mom has a catheter in so she is always dry.
They change her adult underwear as soon as needed.
They do large piece puzzles with her sometimes.
They develop a relationship with the patients. It’s really beautiful to see.
They are just as kind to my brothers and me.
I watched my brother being cared for by a hospice staff in an end of life hospice house too.
He was kept comfortable too. Plus, they offer a social worker, clergy and the most incredible nursing staff and aides.
I believe it’s a calling to work in hospice. I truly do.
Not everyone is called to it but those who are, are truly a blessing to others.
I would highly recommend looking into receiving care from a hospice house if it is available.
By proceeding, I agree that I understand the following disclosures:
I. How We Work in Washington.
Based on your preferences, we provide you with information about one or more of our contracted senior living providers ("Participating Communities") and provide your Senior Living Care Information to Participating Communities. The Participating Communities may contact you directly regarding their services.
APFM does not endorse or recommend any provider. It is your sole responsibility to select the appropriate care for yourself or your loved one. We work with both you and the Participating Communities in your search. We do not permit our Advisors to have an ownership interest in Participating Communities.
II. How We Are Paid.
We do not charge you any fee – we are paid by the Participating Communities. Some Participating Communities pay us a percentage of the first month's standard rate for the rent and care services you select. We invoice these fees after the senior moves in.
III. When We Tour.
APFM tours certain Participating Communities in Washington (typically more in metropolitan areas than in rural areas.) During the 12 month period prior to December 31, 2017, we toured 86.2% of Participating Communities with capacity for 20 or more residents.
IV. No Obligation or Commitment.
You have no obligation to use or to continue to use our services. Because you pay no fee to us, you will never need to ask for a refund.
V. Complaints.
Please contact our Family Feedback Line at (866) 584-7340 or ConsumerFeedback@aplaceformom.com to report any complaint. Consumers have many avenues to address a dispute with any referral service company, including the right to file a complaint with the Attorney General's office at: Consumer Protection Division, 800 5th Avenue, Ste. 2000, Seattle, 98104 or 800-551-4636.
VI. No Waiver of Your Rights.
APFM does not (and may not) require or even ask consumers seeking senior housing or care services in Washington State to sign waivers of liability for losses of personal property or injury or to sign waivers of any rights established under law.
I agree that:
A.
I authorize A Place For Mom ("APFM") to collect certain personal and contact detail information, as well as relevant health care information about me or from me about the senior family member or relative I am assisting ("Senior Living Care Information").
B.
APFM may provide information to me electronically. My electronic signature on agreements and documents has the same effect as if I signed them in ink.
C.
APFM may send all communications to me electronically via e-mail or by access to an APFM web site.
D.
If I want a paper copy, I can print a copy of the Disclosures or download the Disclosures for my records.
E.
This E-Sign Acknowledgement and Authorization applies to these Disclosures and all future Disclosures related to APFM's services, unless I revoke my authorization. You may revoke this authorization in writing at any time (except where we have already disclosed information before receiving your revocation.) This authorization will expire after one year.
F.
You consent to APFM's reaching out to you using a phone system than can auto-dial numbers (we miss rotary phones, too!), but this consent is not required to use our service.
Wish we could help on this one. I am afraid you are left with the very unsatisfactory guesses in terms of averages.
He informed me that Parkinson’s disease effects everyone differently.
It also depends on when a person is diagnosed.
He also told me that when a person is diagnosed younger in life the disease progresses more rapidly.
My mom was diagnosed later in life so the disease progressed at a much slower pace.
It’s a brutal disease that becomes challenging to live with as it progresses.
Some people have dementia with Parkinson’s disease and others don’t.
Some like my mom develop only mild dementia at a very late stage.
My uncle lived to be 96 with his Parkinson’s disease. He suffered terribly the last few years of his life but his was slower progressing like my mom. He had no dementia.
Mom is 95 and is in a hospice house.
She can no longer turn herself over in bed. She is completely bed bound.
She doesn’t eat much but she has never been a big eater. She is extremely thin.
I am incredibly grateful to her nurses and caregivers. They are incredibly compassionate and take wonderful care of her.
They go above and beyond to keep her comfortable.
Amazingly, she hasn’t needed any pain meds.
She only takes her Sinamet and a very low dose of Seroquel.
Due to Covid only two people can visit at the time but I FaceTime with others so mom gets to see them. Mom loves that. My daughter in Denver FaceTimes with her all the time. My godson does too. Lots of nieces, nephews and cousins do too.
I do take comfort knowing that mom is receiving excellent care.
She would never be able to receive the care that she is receiving at home like she is there.
They are equipped with a staff to care for patients 24/7.
This place is remarkable because there are only three beds.
They love their job and it shows in their care.
Anyone who has done caregiving absolutely knows what a tough job it is!
My heart goes out to all hospice caregivers.
Mom has a catheter in so she is always dry.
They change her adult underwear as soon as needed.
They do large piece puzzles with her sometimes.
They develop a relationship with the patients. It’s really beautiful to see.
They are just as kind to my brothers and me.
I watched my brother being cared for by a hospice staff in an end of life hospice house too.
He was kept comfortable too. Plus, they offer a social worker, clergy and the most incredible nursing staff and aides.
I believe it’s a calling to work in hospice. I truly do.
Not everyone is called to it but those who are, are truly a blessing to others.
I would highly recommend looking into receiving care from a hospice house if it is available.
Wishing you all the best.
Take care.