Hello community, mom has severe dementia and requires 24/7 care and supervision, which I am no longer capable of providing. I love her, I have done my best, but after years of doing this I am mentally and physically ill from stress and depression.
But she cannot be reasoned with, has the mental capacity of a toddler. Refuses to go into nursing home. It is no longer safe for her to be home. She has fallen several times while stumbling around the house in the middle of the night, she once fell off the porch. Eventually she will probably fall and be seriously injured.
My understanding is she needs to be admitted to the ER and then hospital will place her, but how do I get her into the ER? Do I call 911 and say "my mom needs to be in facility, it's not safe for her to be at home anymore...." and they'll send an ambulance?
I once called 911 when she fell and hit her head. When the paramedics showed up she flipped out and refused to cooperate. They gave her ativan and carried her into ambulance. If there is no serious injury, can the paramedics say they can't take her against her will? She is clearly not mentally sound. She has medicaid. I have durable and medical POA.
Is she on Medicare or Medicaid? They are different.
You don't give many other details... does she have a medical diagnosis of dementia?
What are her financial means... does she have more than SS monthly? Other assets? This will matter in figuring out where she can be placed.
Thanks for clarifying.
Yes.
If Mom only has her SS and some pension, then I would visit some LTCs and ask questions. First do they take Medicaid. Then see a Medicaid caseworker and start the application. If Mom has no assets, it should be fairly easy. In my state you have 90 days from date of application to spend down any assets, get info needed to the caseworker and find a place for Mom. For my Mom, she had 20k. I placed her May 1st, she paid for May and June. I started the Medicaid application in April. By June I confirmed the caseworker had everything he needed and Moms Medicaid started July 1st.
If Mom ends up in the hospital allow her to go to Rehab. While there, have her evaluated for 24/7 care. If its confirmed she needs it, then tell them you cannot care for her any longer and she will need to go to LTC. Where I live Rehab and LTC are in the same building. So very easy to transition someone from Rehab to the LTC side. You can refuse to take her home with the hospital, too, just say she needs LTC but easier if done at Rehab.
This is the information we were told.
I called 911 and reported her as unresponsive to me, laying on her left side in bed and could see her breathing. Awfully compassionate EMTs arrived and ultimately took her to the ER. Mom always believes a professional rather and me, so they had a MUCH easier and pliable woman in mom, at that time. She was not stable enough to walk by herself and without eating, they said it would be a good idea for them to find out why. She agreed with THE EMTs. Had I suggested it, there would have been NO WAY she’d have responded positively.
I stayed out of the EMTs way as they dealt with mom so she didn’t think I was ‘interfering’, even though I am POA & have medical directives. Mom has Medicare and is Medicaid pending. She eventually went to LTC from rehab from the ER.
Wishing you strength to make the call and in returning to caring for yourself.
You can't just call 911 or the ambulance for any reason, there must be a somewhat valid emergency. What worked for me is my father kept trying to put his jacket on and kept trying to walk out the door. I called 911 because I was frightened by his behavior. I told the policeman what was going on and he thought it would be best to have him evaluated because he "didn't want to be called 3 hours later to search for an elderly man with dementia wandering the streets". So off he went, and once in the ER, the next day (actually it might have been Monday, and I called on Friday night) I met with the SW and case manager at the hospital and conveyed to them the situation at home wasn't good for either of us for him to be there anymore. They held him and found a facility in about a week or so. So, you need a good reason to call 911, maybe after she falls, or maybe she wanders away, or for some other reason that you suspect she may need to be looked at by a Dr.
Once she is there at the hospital, there is a possibility that things may not go as you would like. The hospital may try to send her back home. That is a very real possibility. At that point you may have to resort to tactics that may seem unappealing or undesirable and are not easy to do if you really want to have mom placed. You are going to have to battle with the hospital case manager and you might have to have APS get involved. You are going to have to be persistent and consistent and unequivocally and forcefully state to them that you are unable to safely take care of her anymore. You may have to fight, so you are going to need to stay strong.
You can also try contacting a SW before you do all of this. You can have mom's Dr. send a referral to the affiliated hospital or health group network.
Keep us updated, there are a lot of knowledgeable people here that can help.
’Maintaining compassion’ is difficult day in and day out! Your mom has been blessed by you and the care you’ve provided.
As you recognize waning compassion, please see it as a signal and opportunity to make alternative care plans for mom.
Continued progress and strength on this journey.
The more commonly known slang-term for a 'Social Admit' is an 'ER Dump'.
You follow the paramedics and when everyone's arrived at the ER you ask the nurse to send down a social worker because your mother needs a 'Social Admit' (be sure to use this exact term).
When the social worker comes down to talk to you, tell them that you cannot provide adequate care for your mother anymore. That you will not be her caregiver anymore. They will make all kinds of promises of unlimited homecare and resources if you take her back, but will deliver on none.
If you take her home, you are assuming responsibility for her. So don't do it.
The hospital will admit her and keep her there until they find an available bed for her in a memory care facility.
Cover909
1. You need to get the house painted and she is going to stay someplace for "a while"
2. Your doctor says you have Covid or something and she needs to stay someplace away from her while you get better.
3. You need to go to (INSERT PLACE HERE)to take care of my friend. I have made arrangements for you to stay at a hotel while I am gone. They have special people who will get you your meals and can help care for you.
No point of calling 911 if there is not a certified emergency; you don't want to waste their time and materials. If she falls and is wounded or if she has a "flip out" episode call them and request they transport to hospital (hopefully, she is not a "show timer" who can put on a good act for "outsiders"): while you are calling them try to get some video on your phone of a her acting out. Follow the ambulance to the ER and once there, immediately request to speak to the ER SW on duty (show her the short videos of Mom really acting out, that will help). Tell the SW that Mom is not safe to return home (sounds like she lives in her own home, not in yours) and that you can not be responsible for her care or for going to her home and cooking, cleaning and any other chores your don for her. (could get a little "ify" here since she lives in her own house) but stick to your guns and do NOT drive her back home. Social worker will promise you the world if you take her home but don't do it! Not hospital's concern if she leaves with you. Now in the past a few hospitals have actually sent people home in cabs and they might try that so maybe get a few of her neighbors to be on the watch. If she starts to roam the neighborhood, anyone can call you or 911.
You say she has Medicaid but it is not the one she will need for LTC. I would call the county dept of health? Office on Aging, tell them you need the names of a few certified elder care attorney's because you need a free 15 min consultation re: an elderly person. You could also get in touch with your Mom's current Medicaid caseworker to get more information on the switch from home Medicaid to facility Medicaid; but an attorney may be able to give you more information about the dissolution of Mom's assets (house).
I'm in NJ also and very few standalone MCs or ALs accept Medicaid. Those that do, reserve the few available beds for their current private pay residents when they run out of money. There are many LTC facilities in NJ that have MC units (some are secured to prevent wandering). Staff in those units are required to receive special training and take continuing education to help them deal with the issue of dementia residents. Saying this so you won't be surprised when the hospital goes directly for placement in an LTC.
Wishing you peace and good luck on this journey. Please keep us informed.
Couple things, Go visit all the care facilities near you (Or farther away if feasible) make application and get her a bed (term for facility having a place for her).
or, resolve yourself to dropping her at the ER ~ asking ER for a social worker, the social admit i.e. unsafe release ~ stand firm on your inability to continue to care for her.
either way~ Your original question was how to get her there… Have you tried making an appointment for her for something she likes… that’s exciting, like getting her hair done or going to lunch. I would do that a few times (Or just the once) and then on one of those times just keep driving to the hospital. Pull up in the ER, or at the front of the home that you have already gotten her enrolled in ~~park the car, take the keys, go inside and get an orderly to help you.
or maybe just encourage her to go for a walk with you… get her walker or whatever she uses and just start walking down the street. When she gets tired…have a friend pull up “unexpectedly” (Of course have this planned) and he’ll say, “hey, do you guys need a ride back to the apartment” and you guys accept the ride, but he actually goes to the hospital.
It’s time to get creative!! we were really good at this when we wanted
out of the house as teenagers… Lol maybe it was practice for this kind of conniving as our parents age!
Best of luck! Maybe let us know what you came up with or what worked!!!
And the answer is, there is no way to circumvent that other then to keep your eye on the prize which is that ultimately~ once your mother settles in, she will get accustom to the routine, and it will be better for her in the long run. And it will definitely be better for you,
And if you believe in the afterlife, or any higher essence of order, then her inner self, which deeply rooted, should be a kind, wonderful mother, she would want this for you.
guardian appointment through Probate Court. dlk
We had a professional caregiver everyday for 3 years. When she started to imagine people coming to her house at night, or people stealing from her, cooking and not eating, the next step was necessary. She would call 911 once or twice a week stating it was her heart. Even the paramedics told me she can’t be left alone. She needed help taking her meds, cooking, housekeeping etc. we did what we could. I was POA so I dealt with her finances. Not an easy task. She forgot to pay her bills, never opened her bank statements but accused them of never sending them.
I started to do her taxes only to find papers from 1986 mixed in with current papers. Had to search thru boxes for paperwork. After three years of organizing and reorganizing only to have mom mess them up again, I knew it was time. Enough! I couldn’t do it anymore!
So we began visiting and interviewing (8) facilities . Chose a new facility where we thought would be perfect. When she was suffering from anxiety and wanted to go to ER, we took her. In the meantime, her furniture was moved to her new home. We had her taken to her new home directly from ER.
She became aggressive, and attacked her aide. My mom never would have behaved that way. She tried to escape and made it once. Her care was subpar so we moved her to another more expensive Memory Care facility and loved it.
It was a hard journey and it wasn’t easy but it was what mom needed. Yes, there was guilt, but I couldn’t do it anymore. My mental and physical health were affected.
Thank goodness I found this site. It helped to know I wasn’t alone. Everything I was going through was exactly like fellow members. They helped me through a difficult time.
Sorry my post was so long. I hope it helps others know they are not alone.
It’s a terrible situation to be in having to make these decisions. But you have to save yourself now. She will be safe and you will be free from the extreme stress that 24/7 caregiving causes.
The "hospital route" is a possible option, but as others have said lacking other serious medical conditions that might require a discharge to a "post acute care setting" (typically a "Rehab" facility); once stable she may just be discharged but if you make it clear to the social workers at the hospital that "it is NOT safe" for her to return to be home alone, that "you" and "no one else in the family nor friends will take responsibility to assure she is safe in her home;" then the hospital has a responsibility to work out a "safe discharge." Ask for a discharge to a Rehab facility, so she can get PT and/or OP (Physical Therapy is lower body and Occupational Therapy is for the upper body). If there are other medical needs: needs oxygen, needs IV antibiotics, is anemic, needs wound care then these other "medical needs" can help get a LO into a Rehab placement for a temporary time (maybe a week or 2, maybe longer).
Do research now to identify a high quality Rehab facility which ALSO has a Medicare and Medicaid qualified "Skilled Nursing Facility/SNF" right there so that if they can do the work up and she meets the "level of care" necessary for a permanent placement in the SNF long term care unit; it is less moving from one place to another.
Hope you have all the "legal docs" in order: durable POA (not the springing type), an advance directive naming you as the "health agent" and access to her accounts to help with the paperwork for Medicaid Long Term Care coverage which is different than "regular Medicaid" for just medical care. Your State will want as part of the "5-year look back" all taxes filed, bank and other financial account statements, how any assets if any were transferred GOING BACK 5 full years. Assuming she is already on Medicaid that should help but she based on the medical information submitted by the SNF has to meet your State's "level of care" threshold to qualify for Medicaid Long Term Care coverage.
Another option is to involve Adult Protective Services (APS), call your local Area Agency on Aging and get with APS. Be very clear with them that she is "not safe" to be alone, have documents regarding the hospital trips and the dementia diagnosis. You could pursue guardianship and handle this OR you could leave it to the State to take over guardianship.
None of this is easy or fast; frankly it is all maddening. You might find it helpful to work with a talented therapist to unpack all of this. Caring for a LO in the best of circumstances is a challenge. When dementia and oppositional behavior comes into play with their lack of awareness of their condition and/or refusal to accept that they need help beyond what an adult child can attempt to provide it is a heart wrenching experience.
Further, it is not an adult child's duty nor their responsibility to give up yourself in order to care for a LO "hands on" 24/7! Getting your LO the care they need in a facility is STILL CARING and it is also caring for yourself.
Best of luck with this and I hope you can work on self care too as you work through this. Take care.
Since she is on medicaid you can look into programs that will also help pay for her care and needs right at home. We have one here called IRIS that is wonderful. They will will pay for her caregiving needs (includes family too) and pay for things she needs in the home ...as well as activities outside of the home.
Please do NOT put her into one of these nursing homes ...not if you truly care about your mother!
do NOT try to reason with her ! Dementia patients cannot reason, make safe decisions, nor retain what is said to them. DO NOT try to EXPLAIN it anymore. For her safety, well being and your safety and well being act now. If while you are doing this, she falls, presents with any sign of illness, behavior changes etc etc, call 911 immediately, have them transport her to ER and, confer with Social Services there, refuse to have her sent back home . Have them admit her if necessary and then transfer her directly into a facility (
she is unsafe, your health will not allow you to continue care etc). Do not feel guilty, do not allow her to verbally abuse you or make you feel guilty. She needs 24/7 care in a facility , most likely memory care unit.
You tell her you're taking her for a ride (somewhere she likely would want to go - a garden, museum, lunch at a restaurant).
You want to keep her calm.
When you arrive, tell her you are visiting a friend there.
Comfort her as much as you can. Keeping her as calm as possible is key to an easy transition for everyone.
Remember to remember ... put yourself (your head / brain) into how her brain functions (parts dying, confusion, fear) and respond to her accordingly. You cannot 'think' react/behave according to how you think; you have to consider how she thinks and interprets change / behavior.
Smile, hold her hand.
When you are there (introduce her to staff as 'my new friends.'
I hope this helps.
Gena / Touch Matters
Been in an ambulance a few times and was not asked "Do you want to go to the hospital"? Lol
If we had gone the other route (assisted living, or memory care) I feel he would not have gotten as personalized care, he wouldn't have been as close for me to visit, it would have cost more and the places I visited would only allow a certain percentage of medicaid beds...so no certainty that he could have transitioned to medicaid after 3 years.
That doesn't answer your question of how to get your mom there, but I did want to throw in the thought of an adult family home. They are actual houses in actual neighborhoods (maybe even in your neighborhood...?) and are a name rather than a number.
As others have said, there is no "reasoning" left. Persuading your mother to agree to placement is not part of the argument.
You will be limited to facilities that accept Medicaid, but the choice is no longer your mother's.
The advantage of getting the nursing home set up ahead of time is that you will have chosen it, whereas taking your mother to the ER and letting them decide what to do is more risky in terms of where they will place her. Before arranging for placement, though, you will need to talk with someone at each facility to figure things out, they will want to know about her and might need to get a medical report from her doctor or otherwise assess her. It's probably a good idea to talk with her doctor's office ahead of time and to work with a a social worker or geriatric care manager could be very helpful as you go through this. Not easy, but nursing homes and memory care facilities are used to the upset reactions of those being brought in for their placement, so that shouldn't be a problem for the facility.
Cover909
As time went by, I saw she needed some extra help, so I had "new friend" come by and talk about quilting. They would go to the store together, take walks and spend time talking.
I know at some point an "event" would present it self to me that would allow me to take action and move her into MC. That event was a pulmonary embolism. After a week in the hospital, I picked her up and drove her where I live (300 miles) into MC. The drive was uneventful until I pulled into the facility. Then we had the melt down.
I also had a POA, and the Trustee of her estate and access to her bank accounts.