When my mother with early-to-moderate dementia has a bad day--ie., crying, anxious, or angry--I find it greatly affects my own mood. I am having a hard time separating my own feelings from hers, I guess. I have recently been prescribed Lexapro and it is helping to some degree, but I am wondering how other people manage to compartmentalize or let things roll of their back?
This is what I responded to: "I am wondering how other people manage to compartmentalize or let things roll of their back?"
Maintaining one's equanimity is not easy. It is a practice.
Setting boundaries is a practice.
I was addressing this writer's question as to what I did / do. That is all.
Hopefully, for your own well-being, you can re-direct your vile anger elsewhere. Clearly, I trigger something very deep inside you. And, yes. People / caregivers need to find ways to self-protect - to function. Apparently, you do not understand what I was offering - and that is okay. Some other people did. I hope you will let this go now. It doesn't serve any purpose to keep spurring your rage at me ... when I am answering a writer's question. May peace be with you.
No need for the passive/aggressive response. You can address me directly because clearly your post here is for me.
Do you not think everyone who is a caregiver doesn't already know they need to have boundaries in caregiving? Or they don't know they have to take care of themselves. People know this. Setting those boundaries is the hard part for many people because they are often alone in the caregiving situation. Or they neglect their own care due to things like work, their kids, or their home and are simply to exhausted to keep up on themselves.
Yes, I will as you request "let it go" here and everywhere else on this forum.
I do realize that not everyone is cut out to be a caretaker, or is equipped with the patience needed. I also realize that a selfish, nasty parent that neglected or abused their child, does not have the right to expect them to do anything for them. If you choose to take care of your parent, it can be a gift of time to show them they are safe and loved. Just remember to take care of yourself too.
Best of luck to you. 🙏❤️🍀
PS, there is 1000% nothing wrong with going to a movie by yourself and enjoying some popcorn and two hours of peace! 😉
I've done 'a lot' of personal growth / counseling trainings so understand some of the ways to do this. For example, in Psychosynthesis, they speak of sub-personalities - all vying for attention inside us. We are like a puppeteer (the 'self') holding the strings of our sub-personalities. It helps to realize there is more than 'one' of us inside us. There are many parts or sub-personalities inside us.
How I separate another's expressions / moods from taking them in:
* First of all, dealing with a parent (or in my case, a client), it is not easy when dementia and/or narcissistic personality disorders are involved, along with a wounded parent who takes out their anger on YOU.
Letting things roll off their back ... wouldn't THAT be nice (smile).
It likely doesn't happen to most of us, like 99.99%.
It takes focused effort and continually doing behaviors that work.
And, then it still requires inner work and shifting our attention.
* I visualize(d) a bubble of safety around my entire body.
Bubbles that are 'safety' and 'self-protection'' bubbles.
Do this visualization several times before you need it and then when you feel triggered by your mom's mood / expressions, see this bubble of self-protection, self-separation, self-compassion.
- And LEAVE THE ROOM . . . soon as you feel you are starting to absorb (that is a good definition of whats happening - absorb) - leave. Even for 1-5 minutes.
- Do the visualization and practice deep breathing. Look up meditations, healthy breathing practices. Do this before you visit your mom and when you feel activated when with her.
Breath in: I am safe, calm, at peace with myself (or whatever feels right to re-affirm).
Breathe out: I release all negativity (or whatever feels right)
* I'd suggest a regular meditation routine (it does change your brain chemistry in the best of ways).
- Look at Rick Hanson, Ph.D., Buddhist scholar and brain science (he wrote Buddha Brain). He speaks of neuro-plasticity - which is really important to understand - basically what we repeat, practice changes our brain synapses for the better. Then, this 'new' behavior becomes our new/then old habits. He offers a (free) meditation Wed nights 5:45pm-7:30pm Zoom. Sign up at his website. He offers many workshops and gives a scholarship when needed.
I recently took his anxiety workshop (12 weeks).
* Exercise, get enough sleep, eat as healthy as you can.
* I have shifted from absorbing to compassion - for the person.
See the person in a 'bubble of light and love.'
- * Are you in therapy or dealing with your grief of losing your mom?
While I support Lexapro, it is equally important not to stuff in the feelings and process through them. I suggest / recommend both courses of action.
You cannot change THEIR brain chemistry / health situation.
You absorbing 'may be' a way of not wanting to accept reality. Just something to consider. It- you do the best you can
REDIRECT by holding her hand, smiling, giving a hand or foot massage.
It may help you to shift as soon as you can when you leave the visit and do something that is enjoyable to you - dinner out, a movie, gardening, a drink with a buddy, or get a massage. And visualize that bubble of your energy shifting - as you need it to (as) learning to shift how you feel when you leave will help you re-program. And, let it go.
I had a nasty mean client for 3 yrs and worked on this all the time. And, on top of that, I kept telling myself "you should know how to do this ! " - at that time though, I didn't understand what was going on in her brain. If I did, I think her outbursts (anger directed at me) would have helped me shift to compassion and taking (more of the) space / 'time outs' that I needed, which I did). It is different with a parent.
* You might need to shorten your visits ... to take care of yourself.
Your question will help many here. Gena / Touch Matters
People can take every workshop there is. They can watch and memorize every word Teepa Snow has ever said. There comes a time in family caregiving situations involving a needy senior with dementia (I can't even bring myself to use the word 'journey' because I find it ridiculous) where unless they die they have to be placed. Sometimes 24-hour homecare is not possible for reasons like the person is too advanced in their disease to safely have their care needs met in the home. Or they can't afford it. Or their caregiver cannot manage their needs anymore. All the meditation, self-care, and imaginary love bubbles a person can think up for themselves and the person they're caregiving for doesn't change or help a thing. Being an expert on dementia, mental illness, or addiction doesn't either if you are the one down in the trenches doing the work for a nasty, demented elder 24/7/365. Or a mental case. Or enabling an addict by allowing them to live in your home and providing for them.
You had a nasty, mean CLIENT for three years. What person who has ever been in the homecare field hasn't had nasty, mean clients? I've had hundreds of nasty, mean clients. Being a caregiver to a client is something very different than being the hands-on family caregiver for someone with dementia, mental illness, or addiction who lives in your house or you live in theirs. A paid caregiver or case manager goes home at the end of their workday and that's when their responsibility for the client ends. They have lives outside of work. The family caregiver even if they get the chance to meditate or go out to lunch with friends is still responsible for the dementia mess at home 24/7/365. Many times it's just as bad or worse if your LO is stubborn but still in their own home and you can't take any action for the sake of their health and safety.
The OP is struggling to compartmentalize her own feeling when her mother with dementia is exhibiting certain behaviors. She should not be her mother's caregiver and if she isn't, she should restrict the number of visits she makes to her, their duration, and phone calls.
At some point a person has to choose their own health over their LO with dementia.
chicken n dumplins and big fancy cakes. It’s very difficult and I cry a lot. BUT we have to remember these episodes are NOT her. It’s the disease. I too always try to smile and be perky to cheer her up. Most the time it works. I believe medication has helped me as well. If it helps me keep a bit of sanity it’s worth it. I will not dismiss her or cut her out of my life. She is the only Mom I have. And we are all they have. Keep praying. Take some time for yourself even if just a walk or read. I will never abandon my Mom or stop taking care of her. This is my life now. My choice to be her caregiver. She always told me “have no regrets “. With all I do for her I will NOT have regrets knowing I am doing everything I can for her. Before you decide make sure your decision is one you can live with when God takes her. You are not alone. It is very heartbreaking, exhausting and overwhelming for us and our families. God bless.
your advises.Thanks ! Richard from Canada🌺🙏🏻
I am inclined to agree with you to a certain degree. If there is any history of dysfunctional family dynamics or abuse, it is never a good idea for the adult child or children to become caregivers to their parents with dementia. Even in families where there wasn't abuse and dysfunction, there must be a limit to what is expected from a family caregiver.
No one has to tolerate abusive behavior even when the abuse is coming from someone with dementia or mental illness.
I totally agree with you about needing to be medicated to cope with someone else's abusive dementia behaviors. I would not do that either. If a person has to be drugged up to get through their caregiving day, they should not be a caregiver.
Agree w/much of what has already been shared. I found it helpful to tell my mom the boundaries of behavior [no name calling, no guilt tripping, no screaming, no telling me 'you want to kill yourself', civil conversation is expected].
This was for me, to say it out loud. NOT that I expected her to be able to change her or control her behavior. Saying these boundaries out loud, gave me the courage to say (if there was a breach), "Name calling is not something, I am up for" ( of fill in the other boundary), I will need to end the visit, call, etc. We can visit/talk the when you are feeling better at a future time. All said in a very calm and slow voice; and then I would just leave, exit, end the call.
You cannot control them, but you can with practice control your reaction and then control what you do: leave, walk away for a bit, end the call. One does NOT have to take it, if it is too much to take.
Also, work with a great therapist. Mine helped me work through (sill working through, even thought my mom passed 2 years ago) much of this. There is the anticipatory grief, the grief, the anger, sadness, the guilt sometime, and other feelings to process.
And some of this journey is like having to turn one's own brain inside out. Initially, I would try to explain things or correct her; like that was going to work. Eventually, I just had to not fall into that trap. Much like if she refused to ever leave her room at the nursing home, so be it. There is not much one can do, with their behavior or choices. Let them. (PS that is a great book if you are interested: by Mel Robbins).
I also found that limiting contact, at the end of the day, was best for me. I ended up blocking her phone number. She could leave a message, ranting or what every and I could choose when to listen. If there was a real emergency; the the NH staff would let me know. Not sure where your mom lives now, but you do NOT need to answer every call especially if most are calls to rant at you.
Best of luck with this. Hope you have family and friends to support you through this. Hope you can work with a great therapist or maybe a grief counselor; they can really help with this journey,
What happens is a role reversal. I become the mom (caregiver) reassuring her child that everything is ok and we can fix it or get it fixed or whatever. Try understanding your mom can't help herself and try the role reversal approach....STAY CALM and ask questions and provide answers or distractions (best parent tool ever!) to help her calm down. Once I realized I am not the daughter anymore but a caregiver/parent it made it easier to deal with and help her. That is not to say there is not a sense of grief that I don't have the mom I used to, but it's easier to help her in my role as caregiver and less stressful for me in the long run. Bless you for caring so much,
You're doing a great job of handling her issues, but keep in mind that appropriate medication would make your dealings with her much easier. I wish you luck as you move forward in this journey with mom.
Meet her crying, anxious, angry mood with your own cheery, or at least calm demeanor. Practice non-emotional responses. That will not only help you to remain calm, but it will signal to her a calmness that she's having trouble finding her way to. You are modeling the behavior for her to follow.
I'm not going to say I haven't been frustrated and reacted in anger. I am human, and so are you. But I try and steady myself before I go in the room, and put on a cheery face and cheery voice, and put myself in a good mood, that even a negative or difficult disposition is not able to bring me down. I prepare for it. I know I am going to be met with negativity. I just ignore it and continue to project a positive attitude. If I do get upset, it is best to simply turn and walk away. Go outside for a while. Gather my thoughts. Remind myself that the dementia patient is unable to regulate their behavior. After a while, I'm ready to try again.
It is completely normal to feel "mood contagion" when caring for a loved one with dementia. Dr. Lisa Feldman Barrett’s research offers a few powerful neuroscientific concepts that can help you create that "compartmentalization" you're looking for by changing how your brain predicts and labels your experiences.
Here’s a list to try to help you manage your feelings. I’ve been finding what I learn from her very helpful in my own life.
🧠 The "60-Second Body Budget" Cheat Sheet
Based on the work of neuroscientist Dr. Lisa Feldman Barrett
When you feel your mood "dropping" or your mother starts an outburst, try one of these Micro-Deposits to stop your brain from crashing:
~The "Candle" Breath: Inhale for 4 seconds, then exhale through pursed lips (like blowing out a candle) for 8 seconds. This tells your brain "I am safe," which stops it from pumping out stress hormones.
~The Temperature Reset: Splash ice-cold water on your face or hold an ice cube. This "shocks" your nervous system out of a negative emotional loop and lowers your heart rate instantly.
~The "Biological Glitch" Reframe: When she yells or cries, say to yourself: "This is a biological glitch, not a personal attack." This separates her "malfunctioning brain" from your own emotions.
~The Sensory Shift: Quickly name 3 blue things you see and 3 sounds you hear. This pulls your brain out of the "story" of the stress and back into the physical room.
~The Deconstruction: If you feel a "pit" in your stomach or a tight chest, tell yourself: "This is just physical energy (glucose) moving around my body. It isn't 'misery' yet."
The Goal: You aren't "fixing" her dementia; you are simply protecting your own "Body Budget" so you don't run out of emotional currency.
I'm sorry you are dealing with this. Does your mom live with you? My mom has frequent bouts of anxiety where she is very nervous and scared for no apparent reason (noting no official diagnosis of anything other than severe anxiety right now, her cognitive abilities memory reasoning conversing are fine). She can't control it, she tries, she has a psych np that she talks to. But I've always had a good relationship with her not everyone has had that so their perspective may be different.
That said, she is never mean to me or abusive. It depends on the day how I manage it, I have a counselor of my own, I'm on zoloft. I try to take time for myself. I don't live with my parents. It might be different if I did. When I have a bad "reaction" day, I just remind myself tomorrow is a day I can try again and try to respond differently and not "absorb " it. I used to pretend I was Wonder Woman and I had those bracelets that the emotions could bounce off of, or imagine a force field around me.
That's the hardest part for me. In a way you kind of have to be a bit " clinical" about it which requires a degree of separation, which to me feels very sad. Like I said to my husband the other day I have to act sometimes like I'm "just a home health aide" and sympathize and empathize, but not let it come home with me (poor guy never knows what's gonna walk in the door lol), the daughter in me my heart breaks. I agree with not feeding into it, I tell her the feeling will pass, it always does etc .
Counseling with a good therapist focusing on "radical acceptance " or DBT therapy is very helpful to me. Today I had a good day. Maybe I'll get a frightened call later that will knock me off my equilibrium. Lately I've been able to hang up from those calls and go back to what I was doing, some days I wallow in worrying after. No one is perfect.
Early-to-moderate dementia is not a free ticket to ruining your life, which is as important as hers.
I don't think the mother is able to control her behavior, and confronting her about it is not going to be helpful.
I do agree that an appropriate facility is in order with experienced staff to cope with mom's moods and behavior.
Best of luck to you.
People with dementia tend to mirror the attitudes and emotions of those closest to them, so it's important that you try your best to put your best foot forward even if you have to fake it.