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I would like to go live with them and I know that living with them would not cause me to lose my disability. I am not eligible for SSI supplement anyway. However my concern is this, my parents being in their '80s at any time one or both of them could be come reliant on my care. If I were to become their caregiver I would lose my social security disability. I don't know what to do!? I'm afraid to move home with them for fear that something could happen and they would need me to care for them and I would lose my disability. Would I be able to hire in a full-time caregiver for my parents to avoid me losing my disability? Do you have any other suggestions?

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Why would you lose your disability income if you moved in with your parents? That would not happen. You would still be disabled regarless of where or who you lived with.

I don't understand what kind of disability you collect here. You say you're not eligible for SSI. So are you on SSDI? That's different. On SSDI you can earn some money if your parents are in a state that has a family caregiver program. Your disability if it's SSDI will not be affected.
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Reply to BurntCaregiver
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So, you are worried you'll lose your disability status because you aren't really disabled in the eyes of the government since you're able to perform caregiving duties for 2 elders? Is this your issue??
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Reply to lealonnie1
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Since you are permanently disabled and if you move in with your parents, how will you take care of them? You're right that at any time one or both could become reliant on your care. The bigger question is how would you take care of them, not if you would lose your disability.

The worst case scenario is that you're all living together and all disabled. Then what?

Your parents could hire a full-time caregiver for themselves. You wouldn't have to be involved. Don't sink any of your own money into caring for them. You will need it for yourself.
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Reply to Fawnby
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Rrb333, you had mentioned in another posting here that your parents are quite active. Since you miss them, and they are 2 hours away, is there a reason why they can't come to visit you on a regular basis?
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Reply to freqflyer
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“If I'm on SSDI and living with my parents, and at some point if one of my parents needed me to be their caregiver, would I have to tell SSDI? If I didn't tell SSDI how would they find out I was caring for my parents?”

basically a duplicate post.

Are you now living with your parents?
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Reply to 97yroldmom
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If you think this could benefit you all, you have always got along well, maybe this could be fine.

Would you want to try it as a trial?
Stay for a weekend first? Then a month?

However, depending on personalities, there are risks;
. All be living their 80 year old lifestyle
. You become their caregiver
. Or, they become your maids

If your disability is new, give yourself time to adjust. Equipment, councelling, support services etc. So you can stay in your own home.
Stay as independant as you can - is that worth a good trial first?

60 is nice milestone birthday for you next. A good time to then reassess.
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Reply to Beatty
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Rrb333 Sep 24, 2024
I've been on disability for many years, I'm not moving in with them because I need their help. I'm moving in with them because we're losing precious time together. My concern is if I move in with them and something happens with their health and I have to take care of them I could lose my disability. That's my question.
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Don’t live with them . They mostly likely are expecting you to care for them if at 80 , they want you to move in .

You are disabled .

If/ When your parents need help they will have to rely on the options available to them that don’t include you .
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Reply to waytomisery
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Rrb333 Sep 24, 2024
My parents are quite capable of taking care of themselves. My father plays golf twice a week and my mother is quite active. They are not your typical 80-year-olds. I live far away and we are losing precious time together, this is why they want me there.
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I can't make heads or tails out of this. Sorry.
First you tell us "I am not eligible for SSI supplement" anyway.
Then you tell us "I would lose my social security disability."

All that beside the point, no, if you have ANY disability, and even if you do NOT, do not consider moving in with and taking on the care of elders in their 80s. In fact, move about 1,000 miles away would be my advice, and I say that as an 82 year old with an 84 year old partner.

It is very difficult to live with others. Whether husband, wife, brother, sister, child or roommate it is a crucible to get along. When you move from son to caregiver you go from treasuring loving family member to the "boss" and the "enemy" of their doing exactly what they want to do.

This would be a very bad idea in my humble opinion. I wish you luck. Only you can make adult choices for yourself.
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Reply to AlvaDeer
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Rrb333 Sep 24, 2024
SSI and SSDI are two different things. I am on SSDI not SSI.
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