"Charter" tells us she can only get 3 more visits (mostly it's just a weekly bath). I can't prepare a meal she will eat. i cannot bath her. she must use walker to get to restroom & often needs walker & assistance. she's near totally deaf, suffers chronic renal insufficiency, high Bp (for which meds are constantly adjusted), recurring UTI/yeast infections, wears diapers, very fraile (height 5'/weight 80 lbs). looking for any/all assistance i can get. she should be in a home but all i can afford is her medicare with a supplement. i can get to grocery store for bread& milk and i can get her to her MD appts (at least 18 per year). her meds are delivered. what am i to do? family is either moved or less able than me to assist in caring for her. she resides with me. and i believe she suffers from demntia too
So I tell you RAYCOM246, exhaust all your options, find out what kind of government help you can get for your mother. I don't know if you have siblings, children to help you out. Reach out to your mother's own siblings, hopefully they will step out to the plate and help you out.
You also need to take care of yourself, both mentally and physically otherwise you will go crazy. Stay in touch with friends, find a hobby, get a membership to a gym or the YMCA, go out, even if it's for a couple of hours, even if it's alone, you need to spend some time away from your mother to recharge your mental batteries, to recharge your patience batteries and to enjoy some peace.
You didn't mention if you are married, but if you are, I hope your husband is on board with you in this. I just couldn't do this without my husband help and understanding, he has shown more compassion, more understanding and more responsibility than my own uncaring, irresponsible siblings.
I wish you the best of luck, ALL OF US ADULT CHILDREN, BARING THE BURDEN OF HAVING TO LOOK AFTER OLD, SICK, MENTALLY ILL PARENTS, NEED A LOAD OF IT.
Raycom1, you are worn down emotionally, mentally and physically. I would see if Catholic Charities or your local parish or church, if you have a home church, can offer some immediate hands-on assistance so you can step away for breaks andcget usome systematic help and a big change in your situation.This means starting by getting refreshed in some way, even if it's meeting a friend for coffee, or going to the library to read magazines for a few hours.
If you have a faith practice, continue to use it. If not, find some daily practice that helps you get balanced and centered and feel peace. For me this is prayer, or reading/meditating on the Psalms.
There is no quick fix or easy answer. But there is love and kindness. Open yourself to it step by step and accept small progress.
Get connected with a church or community organization who can help. Reach out today if you can. You are not alone even though it feels like it. Holding you and your mom in my prayers.
Next - contact your county, city, state and find out if there is respite care. This is a service that comes in to look after your mother while you go shopping, get your hair done (lots of luck) etc.Our county provides that and also provides a service like you're getting from medicare - help with bathing etc.
There is also meals on wheels if she can eat normal food. If not, get a good blender (3 HP minimum) make smoothies. This is good for her health & will provide nutrition. I put frozen strawberries, blueberries and fresh spinich along with rice milk in mine. You can add protein powder to give a nutritional boost to your mother. They taste very good (be careful of the protein powder. some tastes good, some yucky) and my mother and I both drink them. I like to put a raw egg in also for extra nutrition, but you have to get home grown eggs because of the filth in poultry houses and danger of salmonella. Throw in 3 ice cubes and viola - a great between meals booster or even replacement depending on the contents of your blend. Raw and living foods will help both you and your mother. Eat raw whenever possible - sprouts, salads, smoothies. Avoid ALL processed foods including - especially- bread. We use cornbread made with corn meal from Mexico, it's cheap and they don't use the chemicals on their corn that are used here. If I cook, it's fresh greens, organic chicken, organic potatoes, brown rice. Avoid processed sugar. I use real maple syrup. Sounds expensive, but if you're not eating meat, you would be surprised at the grocery savings. No wheat four at all. It's all poisoned by the chemical companies who have the farmers in their pocket selling the insect killers, fertilizers etc. My mother is 103 and is able to bathe herself and feed herself. I believe that diet is a big factor in her health. Some people think we're nuts, but I'm 67 and do at least half of my mother's care and run 3 businesses and keep up with the home and even paint and do our own remodeling projects. Food is the main source of health.
I'd also take a look at this website. http://www.eldercaredirectory.org/state-resources.htm
Here's a section from it:
"Every state has an Aging Services Division dedicated to providing frail seniors with home and community-based services, so that they can continue living in their own homes, instead of having to enter a nursing home.
A wide range of state assistance programs are generally available to eligible seniors, including home health aides and skilled nursing care, home-delivered meals, help with household chores, transportation to shopping and medical appointments, as well as counseling, advocacy and legal aid.
In addition to these programs that help senior citizens directly, many states also offer caregiver assistance programs that provide family caregivers with information, counseling, and respite services."
And here is one more site that may be helpful: http://www.needhelppayingbills.com/html/senior_assistance_programs.html.
She was as bad, as you describe your mom. My other sister and I live 1500 miles away, so her 50 YO grandson stepped in as POA.
Good luck and do what you have to do.