My mom has dementia, diagnosed in early 2019. She's at a stage where I see both confusion/memory loss/decreasing executive functioning and increasing needs. At the same time, there are other times when she seems to have clarity and seems more capable. And she STILL lies, manipulates and belittles me. Her lifelong personality is still 100% there.
I've gotten better with boundaries, although I still need more work. What I really want to figure out how to do is to protect myself emotionally from her. Even when she is not in my presence, I feel myself holding grudges and being angry-- that is what I want to stop. I don't get why I can't just let it go?
There are so many examples, but I'll give a recent one to put this in context, because it's not really a big thing, and something I feel I should have been able to brush off quickly. But a day later and I'm still resentful.
My mom needs to see an ophthalmologist because at a recent optometrist exam for new reading glasses the exam showed (blood?) spots behind her retina. Her primary care made a referral and yesterday I called to make an appointment.
Got the appointment made for 10:00 AM next Wed, but I did not have her insurance info so I said I would call back with the info. I called my mom to let her know about the appointment- and that I needed her insurance info. She told me to come over and get her insurance cards. I said I would be over a little later, and she says in a cutting tone- YOU ARE SO LAZY!
I immediately said- I'm not lazy, I'm not dressed, then I said YOU bring them over to me! She laughed like I was being the @%^-hole and said she would. I live like 200 feet away. She came over and gave them to me, looked at my clothes and said sarcastically- You look nice. I responded these are my cleaning clothes.
How does one call someone lazy when they are literally in the middle of doing a favor for THEM?? It will also be necessary for me to drive her to this appointment. Then the dig about my clothes? Why does she cut me down like this? I can't fathom saying those things to my son, ever.
I swear if there was a surgical brain procedure that could sever the area of my brain that reacts to her I would get it. Since that's not possible, what can I do to prevent getting so triggered?
Therapy will help you with this, it's what I'm doing and it's helping me greatly. I recently took my mom somewhere and she kept telling me, "Ok when they call my number you go up there and tell them what I need." "Ok, when it's my turn you explain to the person about the prescription and what the doctor wants." She has mobility challenges and hearing issues, this is her way of avoiding dealing with it, and getting me to be her trained monkey. Again, no cognitive issues. I've been told, "It's just easier when you do it."
You should have seen her face when I said, "No." Actually I said, "Hell no I'm not going up there, this is for you." Hence the face.
You must set boundaries, such as asking her to bring the insurance over to you. You may not realize it but that was a huge step for so many of us to do.
I'm struggling but getting there with the "sitting in discomfort" stage, as in, if she is angry, upset, I didn't do something she wanted, it takes my stuck-in-childhood brain everything it has not to reverse myself and be the people pleaser. If she's mad I have to sit in that uncomfortable awkward place, and after a while I'm literally able to shrug my shoulders and move on. Even if that means not answering the phone, waiting about 10 or 15 minutes then calling back. She probably wonders why I "go to the bathroom" so much... Which is what I usually say when the "where were you's!!" start and the, "I was getting worrieds" appear.
Also finding a forum like this helps exponentially because while we may not be exactly the same shoes, we at least know what size they are...
Good luck.
I really don't know the answer. I do know that you and I are probably too unselfish to run away or ignore them.
At 47, I'm finding that my patience is dwindling. Hang in there!
honestly the only advice I have for you is to get as many other people caring for her as possible other than you, and to tell yourself that she is struggling and she is scared and that’s why she’s lashing out. But it ain’t easy my friend. Try As much as you can to have compassion for her to be the better person
You can listen to anything online now. So, if you are a music lover like me, zone out with a few great tunes!
I don’t know if you like to exercise but I have always done something physical too when I felt like I was going to explode. I used to ride my bicycle for miles and miles. After a bad accident, my orthopedic surgeon told me to switch to my stationary bike.
Exercise releases endorphins that make us feel better. I work out quite a bit because I feel crappy if I don’t.
Then reward yourself with a soak in your tub. I buy all sorts of wonderful smelling bath products and sit in my whirlpool tub and have my favorite music on with candles burning. Sometimes, I even pour a glass of sparkling water to sip on.
Probably because I had to learn good boundaries, I still do the following things with my mom, they might help with you, too.
I tend to do tasks for mom that need her records when I am at her home. It's just easier being where I can find the things I need. And, if you get lip, you can walk away.
(Similarly, I keep her records on her email which I can access which just keeps my life separated from hers and organized a bit better.) It is rare for my mom to be at my home.
I gauge my own temperament before going to her home. If I am rushed for time, or already bothered by something, that is NOT the time to see her.
I guage my mom's temperment before going to see her. I call every morning - often first thing. We go over her calendar and upcoming tasks, but I am also assessing how she's feeling (physically and emotionally). It is not unusual for me to call middle of the day before going over. Again, I'm checking on how she's doing. She's a drinker and can get agitated and upset. A quick phone call can tell me I don't need to be over there right now.
I almost always have a "buffer" when I am with her. That can be an activity I'm doing when I'm there, or an activity I'm going to that can be my exit. This is a habit I learned a long time ago because I can't just sit and chat with my mom for a long period of time without her getting ugly. By having a buffer I can spend quite a lot of time with my mom: going to pick up groceries, taking a walk around the block, doing yard work on weekends.... she has me around (which she likes) and I am not spending a lot of direct time with her (which is healthier for me).
I will use other people as a distraction or diversion when needed. I can't remember what it was recently but a month or two ago I asked my BF to be there while I did some kind of task for mom. He understood he was my buffer and filled the role beautifully. My mom is of a generation that listens to men, and many times if I want her to do something I tell her my BF suggests that she.... mom is much more receptive to things when she thinks they are a man's idea.
Sometimes, despite all my prep, my mom is just ugly. When that happens, I just get up and leave. Sometimes I'm polite and tell a white lie to make an excuse. Sometimes I'm polite but tell her gently (but firmly) that I didn't appreciate the comment and I'll come back later when she's feeling better.
I NEVER leave in a manner that she thinks she could be left or abandoned because of her behavior. I am my mom's sole caregiver and it would be extremely irresponsible - even abusive - to make her think I would hurt her by neglect. And, it would not extinguish behavior if she is frightened - that could result in her lashing out even more.
So far, almost 5 years now, we have made it thru. And, yes, my mom was an abusive alcoholic when I was growing up, so I am as surprised as anyone that I have a rich and rewarding relationship with her now. All of it has been thru my adaptations and boundary setting.
I wish you luck.
That being said, most of the advice I’ve seen is about distancing yourself from the situation. Sometimes it’s a physical distance and other times it is an emotional distance. Physical distancing worked really well for me when Mother was younger. Then the supports that made physical distancing possible crumbled and more attention was needed. At first I tried discussing, then begging and pleading, and wound up in the hospital myself. Venting to friends and family helped some; a therapist would probably have been better. Finally, I tried the emotional distancing. I liked the grey rock approach, but envisioning a stage play or a vast ocean would work too. I was still angry, I suppose, but I was able to distance myself from the drama so that it was her problem and not mine. I just did what needed to be done and stopped trying to get her to appreciate what I was doing. Toward the end, she said “Your brother thinks you are doing a good job.” At that point, I realized I simply no longer cared what anyone else might think because I knew, in my heart, I had done the right things.
Thank you, I take after my mother :)
and give her a hug. or not. wink and smile.
How about we take turns being each other's life preserver? Remember what you cling to in life, and realize she's feeling like she's slipping at the moment and let her dig in.
Focus on the transience of the transaction between u and her, and realize that in a "home" she wouldn't have this opportunity to -hold on-, . .she'd be rudderless. Be glad u can remind her of who she is, and how she is, and allow her to rest and catch her breath, while she grabs a hold of u any way she can. This is one way to think of it, sometimes. My mom is seldom bad to me, but if she is, I realize she's just having a hard time and I thank God she has me to lash out at and that lashing out helps. I tell her I love her. I walk over to her, tell her what good thing is coming next, . . .like favorite meal, phone call to friend, visit to friend or place, grateful for good news that she had forgotten about. Help her find the good. Be a compass. She forgot which way the land is.
Maybe say, "I know, . .I'm sorry". She will know that you are both 'making fun of the trials of life', by u letting her be strong any way that is convenient to her. It will be your (u and her's) joke, . .and u can laugh soon afterward together.
She is now the child u once were, and she didn't treat u like a stranger who was bad when you temper tantrummed or screamed I hate u, when u were lost, scared, helpless, and anxious, . . .so, do what u would for a child . . .act hurt, for a second, get quiet, . .look for the good, tell her u love her, walk to her, see if she wants a hug, tell her how u understand what she's saying, that u agree smwht or don't agree, but can imagine her feelings, and what u think her feelings are, whether ur wrong or rite about what u think her feelings are, and what is hopeful, what is good, what will be good, what was good, and how u both share that history and hope for smthg good, and what's next.
Realize the -existentialism- of life and roll w it. Laugh at the fumbling attempts we all make to gain footing in life, as we work toward gaining any kind of footing. Love the intrinsic experience of life, . .the existentialism of life.
Her saying, "Your so lazy", "You look nice", is her way of saying, "I'm scared, come to me".
We do have to be careful and not assume that fear is what has driven people in all cases.
Sadly, some people have been cruel all of their lives, long before they were old and sick.
My daughter keeps telling me to smile and respond with a positive tone as if she hadn't said anything. It's a way to disconnect and it does help not to challenge her but to go with the flow. Learn not to take the bait. I sometimes don't respond if she doesn't ask a question. Her comment just kind of hangs in the air.
Take care and know you are not alone in your struggles. This is a great place to come to vent, get advice, and connect with others.
That 'awful' scan I MADE her have (the Doc asked for). Countless examples...
The 'yucky' dental x-ray I MADE her have (Dentist needed) was the crunch. Hot day & refused to walk the 10 steps to the car, insisted I drove to the door - but was no room for the car. So half collapsed & somehow I got her in my car. Was so frazzled I reversed into a car (beautiful new sports car) 😬.
I realised I couldn't continue like this. Also that what I was calling resentment was anger. I wondered if the anger was trying to wake me up - to take action.
It worked (eventually). I quit.
Her appointments are her own to arrange now. By taxi or with home care Aides. She still lives her *semi-independence* life but I don't prop it up in any way.
So that's how I delt with it. I let go.
I absolutely love your sound advice.
"I don't get on the stage".
Oh I like this! It is genius.
I had an extremely abusive mother physically and mentally. She was hell to live with. She was mentally- ill bipolar diagnosis before I was born. I felt sorry for her because she was so tormented. As a child I took care of her as best I could. There wasn't much I could do. She used me for a companion sometimes because she had no friends. Those were the better times but didn't last long. At 17 I left because she was too dangerous toward me. I never went back. I have PTSD from my childhood but now less nightmares than I used to have. Many years have passed and I worked hard to make a good life for myself and I did. I would not let her ruin my entire life. She was more extreme than most of these mothers so that made it easy for me to leave. Besides she kept telling me to get out of "her house" and locking me out. I am glad I left and I am glad that I never became a mean hateful person. I don't want to go on about myself so much and I wish you the best to break the hold she has on you. She has harmed you in ways you might not be aware. Please never take abuse from people. Get away from them! Make yourself happy. Love yourself.l
I didn't read all the responses so all I am going to say (as a caregiver for my 94 year old Mom) is I choose how I react to whatever my Mom or anyone else I know says to me. I can choose to get angry or I can choose to focus on staying calm.
I love the poem below by Charles Swindoll about Attitude (a poem I have lived by for decades):
The longer I live, the more I realize the impact of attitude on life.
Attitude, to me, is more important than facts.
It is more important than the past, than education, than money, than circumstances, than failures, than successes,
than what others think or say or do.
It is more important than appearance, giftedness or skill.
It will make or break a company… a church… a home.
The remarkable thing is we have a choice everyday regarding
the attitude we will embrace for that day.
We cannot change our past… we cannot change the
fact that people will act in a certain way.
We cannot change the inevitable.
The only thing we can do is play on the one string we have, and that is our attitude…
I am convinced that life is 10% what happens to me and 90% how I react to it.
And so it is with you…
we are in charge of our attitudes.
A mantra I have for myself is, “I am doing the best I can; I cannot fix this situation, yet I am doing all I can”. And then pat yourself on the back for being there and caring about her. You are only human and have a finite amount of patience and endurance. My guess is you have already gone above and beyond what many daughters would have done. I’m glad to hear you have worked on your boundaries with her, and I hope you will continue to do so. I hope you will also be able to find more direct services for her, so you can be in a more “behind the scenes” role.
I wish the very best for you in continuing to care for a person who simply does not seem capable of acknowledging your love, let alone be able to return that love. And I hope you can find love and support for yourself elsewhere. Good luck!
Please know you are not alone. I was thrust into full time caregiving around the age of 30 with my Grandparents who both had Alzheimer's, then my Step Dad during those 12 years, and my Mom for around 26 years. It's a thankless job. I don't know if you are a Christian but it is my faith and God that have guided me through all these times. My Grandfather was a breeze except having to drop off two kids at school, strap my toddler into his car seat and drive 70 mins or more to care for him and my Grandmother, then leave in time to rush home and pick up my kids from school. My step-Dad sexually abused me as a child but I still cared for him through cancer. My grandmother was a bit like your Mom, very condescending and very combative, after 6 years of my grandfather's Alzheimer's, she got it for 6 years herself. My Mom has always had issues with saying NO to people and how to manage money and she is a hypochondriac, which leads to so many issues. I say this all to you because each one of them, I had to handle differently.
My main suggestion is to remember that God wants us to honor our Mother and Father and Elderly. Many parents or elderly don't deserve this honor, however, God says they do. I can honor or love a person but not like their actions or even condone their actions. I think of it this way. God loves us however he will still judge us based on our choices in life through the free will he gives us. So instead of engaging in the combat with the person you are trying to help, stick to the issue and don't give them the satisfaction that they got a response from you. This will go against everything the world teaches you and our sinful human nature. I even did this for my Step-Dad who committed a heinous act against me. My Mom needed the help and his daughters due to work or apathy could not, so I stepped up. I had forgiving him for the sin he committed however I did not forget the sin. I did what God asked me to do and my step-dad even asked my forgiveness at the end of his life. Something he had never done before. So, I know that God's hand was in that situation.
Make sure YOU have a support group to lean on. If there are other relatives to help, ASK them. Sometimes, I text my siblings the long list of appointments and ask them to pick one they can help with. Sometimes, they can and that's awesome. Sometimes they can't. But I'm also talking about friends or church group to lean on and just vent sometimes. It helps to just release the frustration sometimes so you can reset your mind and attitude.
Last, sit down with you Mom and others that may help and have a frank discussion with her. Let her know kindly that you are doing your best to help her out, however, there must be boundaries in her behavior. Let her know you are doing this because she is your Mom, but you do not have to be abused by her words or actions. Tell her that this is a choice, however, that choice can change if she doesn't treat you better or change her attitude towards you. Sometimes, missed appointments or groceries or errands that you would normally do, may change her perspective once they are missed or she has to go to great lengths to get other accommodations.
I hope this helps you. I'm praying that God gives you a sense of peace that even though your Mom may not show you the appreciation you deserve, that God does notice it. God sees your actions and blesses you for it.
I have to limit my exposure, like how much time I spend at Chernobyl’s lol
Number two is to inform her there is no social contact until she apologizes for her conduct. This holds her accountable and she will think twice before she tries again, and you can be sure she will try again.
It is best to keep your relationship formal.
That is what I do with my mom and there are almost no fights anymore.
Number three is to take a walk in nature and pour your heart out to Jesus. There is not one experience we go through that he has not gone through.