My dad has had end stage COPD since 2015 and lived with me this whole time. I've been through numerous hospital and ICU stays with him and a few times he was even on the vent. All that to say this time feels different. I am so terrified this is the end because he just seems so weak and tired and his body just seems like it can't take much more. He was brought in via ambulance because he couldn't breath and thought he was having a heart attack. They did a heart cath and told me he's in severe heart failure with 15% heart function. He ended up in ICU on a bipap. The next morning he seemed quite a bit better and even the day after that he seemed as if he was headed towards recovery but as soon as they moved him out of ICU he started to nosedive. He got worse over the next 4 to 5 days and now he's back in ICU. I went from having hope because it looked like it was getting better to being terrified this is it. I'm just so scared because him and I had a close bond while I was growing up and young adult. It wasn't until he got diagnosed with COPD and had to move in with my husband and I that my relationship with him went south due to me not being able to cope with some things he did and didn't do as a single father growing up but also because I don't think I could truly accept he had an irreversible disease...I took my anger and frustration out on him many times and said hurtful things and I've felt guilty over it before but now the guilt is really building up and I'm just full of regret and angry at myself that my dad may be leaving this world soon and that's how I treated him. I feel like the worst daughter ever. I've been with him almost every day he's been in there. I'll hold his hand and try to talk but most of the time he's too tired to talk or doesn't say much and the guilt just eats at me. I cry while he sleeps because I feel so awful but also scared because the reality of my daddy not being here soon is setting in. I want to say I'm sorry but anytime I bring up anything remotely personal or emotional he gets worked up and that's not good for his heart right now. He's in heart failure but also dealing with tachycardia and very low blood pressure so I don't want to stress him out. What do I do? Bring it up or leave it unsaid? I feel like I'm bothering him too much lately because I'm struggling emotionally and yearning for closure all the while forgetting that he's going through a lot and his body is very weak and when I step back from myself and recognize his physical and emotional state I question if I should even bring any of this up because it's probably too upsetting for him and the last thing I want to do is make this worse on him. I'm sorry this is so long. I'm just scared to lose him and I took for granted all the opportunities I had to make things better with him. I just hope he knows when he leave s this world how much I really loved him.
I do still wish for you to just be there with your father when you can be. There is no need to wallow in past missteps. He will understand why you ate there now even if no words are spoken. Probably especially if no words are spoken.
Peace be with you both.
Your Dad is going through a lot.
Only day uplifting things to him.
Tell him you Love Him.
Tell him you'll be with him to be his advocate at the Hospital.
Tell him he looks good.
Tell him he'll be better soon and can come home.
Pray for him where he can here your prayers.
If you're truly sorry,, I'm sure you have already said it before and your Dad knows..
Forgive yourself for your both your Father and your Father in Heaven has already done so.
Just be there for him now and don't bother him with your sorry to help yourself feel better, you're there to help him.
Show all the love and kindness to him and he'll feel the love.
He does not have the energy nor the interest.
Hold his hand, tell him you love him, and don't expect or look for responses from him. You can apologize in passing for your own impatience and harsh words, but don't make a big deal out it and don't expect answers or re-assurance from him. He is busy dying.
Thank him for the things he has done to help you in your life. Tell him you will be okay.
Your just being there will comfort him and he will take from your presence what he needs. If conversation is appropriate, keep it to present moment topics like "It's a sunny day," or " let me put bbq jelly on your toast. "
i have no regrets for being there at the end, I still feel guilt for thinking "thank you Lord for taking him, he wouldnt want to live like this".
Staying strong for my step-mom has been my priority, and I can't cry!
Tell your Dad how glad you are he could be with you, your could care for him, how much you learned, how much he will always walk with you till the day he dies. Tell him that you and he have built a whole world of memories you treasure. Tell him to rest, to be comfortable.
I am so sorry, I am relieved you understand that this time has in all likelihood come. Work to make it comfortable as you can for him, as peaceful as you can. I am so sorry for you both.
Your mind will go into overtime trying to find some reason to feel guilty. I don't know that's the way grieving is.
We all go through it. Everybody deals with grieving their own way.
I hope you got his estate affairs done and pre-planned funeral or cremation. You will have to deal with that as well after he dies.
If he has any kind of military stipend and Tri-Care you must notify them immediately after he dies. Medicare will not. The funeral home automatically notifies social security, but I would call them just in case something happens. You don't want a check after he dies because you will have to pay it back.
After he dies you MUST notify the bank and give them a copy of the death certificate. If he has a home with home owner's insurance, you must notify them of the death. Why? If the insurance is in his name they won't pay a claim.
If the estate was not planned anything in his name will go into probate. That is a huge legal mess. Death is a business.
POA is no longer valid after he dies. The Trustee is supposed to handle the business end post death.
You may want to talk with your dad and your family and discuss making him a DNR (Do Not Resuscitate) because if his heart stops or goes into a fatal rhythm they will do chest compressions which can break his ribs and deliver shocks which are all extremely painful. That's up to your family but I would not want to put my parent in that kind of agony. Death by fatal rhythm is actually very humane. They simply black out and die. No pain. No suffering. With an ejection fraction of 15% he is high risk of that. DNR does NOT mean do not treat--it simply means no heroics.
My mom was on hospice for two years, but she got all the medical care including going to the emergency room many times. I used hospice like a home clinic and I told them to do routine labs, and continue her routine medications. She was DNR the whole time and yes she got treatment. My rule of thumb was this: Do not let her suffer. Keep her comfortable. She was--hospice never had to open that "emergency pack". So yes she got treatment -- just no heroics. ***BUT** I managed my mom's medical management and made certain they treated her. DNR does NOT mean "do not treat".. it simply means no CPR. You will be surprised how many doctors and nurses think "pull the plug and do nothing." I was there to remind them to treat her in no uncertain terms. But once she's unconscious and free of suffering--then let her go. That is what my entirely family agreed upon.
It's been nearly two years without my mom and I miss her so badly. It was quite an undertaking trying to recover from her death. My greatest comfort is knowing we all will die, and mom's ordeal of living is over. Nothing can ever hurt her--not her chronic illnesses and she even transcended death.
I still grieve and that is the price of love--grief. I learned to adapt to her loss, but I never stopped grieving. That's because I still love her -- she was my entire universe. Death does not stop your emotions.
That's it right there--acceptance of things I cannot change. You MUST accept it.
PS I have the same issues with my brother(s). Like you, I'll be with my mother and carry it all (like I've done for the past 15 years). My mother and I have very rough moments also...
Your dad knows you love him so just be with him now. Let him be. If he doesn't want to be cooperative with the nursing staff, involve hospice for comfort care now. No point in furthering his pain or anguish but to keep him calm and worry free from now on. Your only goal is to see to it that he's relaxed and pain free.
Wishing you peace and strength at this difficult time.
You may not be ready to let your father go but know that his end of life is soon; if he is suffering, he may feel it is time to go and he may be waiting for you to say it's ok to go. Sit with him and be at peace, hold his hand and continue to let him know you love him (in your mind let the past wrongs go and feel the peace descent).
I'm sorry and hope you, your father and your family are blessed with peace, grace and love.
Your losing it under pressure in the past is nowhere near as bad as a serious estrangement. Any resentment your father felt at the time is almost certainly nowhere near as bad. It’s not important now, anyway.
Forget the guilt, and leave your own worries for now. The sadness should be for the end of a relationship that you have both valued. Do your best to make it as good as it gets for your father, make that something to be proud of.
The only thing that matters now is for him to hear how much you love him, respect him for all he did for you, and that when the time comes to say good bye, tell him how much you love him, and you will miss him but you know he needs to become an angel(term I used for my Mum) and that you will be okay....dont' get me wrong you wont be, I wasnt but in that moment they need to know you will be okay and its okay for them to leave...it's been 1 year 8 months, I have should have could have would everything. I second couselling for grief because it may hit you in different ways, sadness, anger....hearing is the last sense to go, so you may want to play music he loved softly, hold his hands and simply tell him that you love him...give him permission to leave I think is important when the time comes...just my thoughts...you will need emotional support, grief couselling is the best self care you can give yourself. Thinking of you,
It’s perfectly normal to get short tempered sometimes as a caregiver…& you seemed hands on …living with you & husband. I don’t advise you to bring up anything emotional in past …just hold his hand.
just this morning (my mother’s private pay caregiver day off) my mother tells me how ugly I am…so I get upset …& walk away to get away from her for a few minutes…she is 94 with dementia…& sometimes says very hurtful things…I also have to manage her meds for agitation. I got her much calmer than she was a couple of weeks ago…but it’s still stressful.
So don’t feel guilty as every caregiver gets stressed out…some adult children don’t lift one finger & you did so much more.
Praying for you 🙏🏼 …
Hugs 🤗
Don’t think for even a moment that your dad doesn’t forgive you. My dad saw me as his ‘sweet little girl’ until the day that he died. I was a woman in my 40’s when he died. He loved me all my life, even when I wasn’t perfect! No one is perfect!
So, I will tell you one last time, ‘Forgive yourself.’
Keep doing what ur doing. I was close to my Mom too but she was not perfect. None of us are. Guilt is self imposed.
Then I will say that it is important to say the things we need to say to our loved ones when they are still alive, as once they're dead, it's too late and we can be left to deal with the guilt of not saying what we needed to. So please say whatever you feel you need to. He already knows how much you love him, so don't worry about that.
Hospice should help you walk through all your feelings and help guide you through this process. I wish you peace as you walk through this time with your father. God bless you.
What your dad does know is that you took him into your home for all these years, were with him through his multiple health crises, and you're there with him now. He's no dummy -- he knows you love him.
This exact moment isn't about you and your conscience, though. Don't stress him further by burdening him with your regrets. Smile at him, talk gently to him, and tell him you love him. He'd probably like to say some things, too, but since he can't, it isn't fair to assume he doesn't love and forgive you, too.
Later, get some therapy if this is too much for you to handle on your own.