My mom broke her hip 4 months ago and is now walking with a walker. She has been in a Board and Care for 2 years. She refuses to drink to the point of dehydration… I had her sent to ER a couple of weeks ago to get an IV because she was unresponsive due to the lack of fluids. We have tried everything and she also barely wants to eat. Hospital visits are very traumatic for her but do i keep sending her when she is dehydrated? She comes back with bruised arms because they have to restrain her so she stops pulling out her IV. At this point…. Do I let her go? Dehydrate but make sure hospice keeps her comfortable or do I keep sending her to the ER? We've tried everything…. This has been going on for a while. Advice? At this point…. I would say her quality of life is not great.
I'm sorry you're going through this and wish you good luck and Godspeed with a difficult situation.
Your last kind act to your mom would be to let her escape her failing body, and I wish you peace so that you can make that loving decision for her now.
Fwiw, my mother had advanced dementia and I prayed daily for God to take her. She was miserable and it's no life with dementia.
When I was struggling with this decision, feeling like I was giving up on her, I spoke with the palliative care doctor who recommended a book that helped me see things clearly. The name of the book is WALKING THROUGH MEMORY'S FOG BY MARIA SANTOS (Available on Amazon). The chapter on end-of-life care and artificial hydration explained that in late stage dementia, IV fluids do not improve quality of life and may actually cause more harm than good. They can lead to fluid overload, which causes swelling and difficulty breathing, and they often require restraints, which cause distress and bruising. The book gave me the language to talk to the doctors, to say "I want to focus on comfort, not on prolonging life." It also addressed the guilt I was feeling, the sense that I was somehow abandoning her, and gave me permission to let go. I loved how the book didn't just give medical advice, it gave emotional support, and it helped me see that letting her go peacefully was the most loving thing I could do.
You are not a bad person for asking these questions. You are a loving daughter who is trying to do the right thing in an impossible situation. The hospital visits are traumatic for her and for you. The bruises on her arms are a sign that her body is fighting against the very thing that is supposed to help her. At some point, you have to ask yourself, are we doing this for her, or are we doing this for us? If her quality of life is not great, and the interventions are only causing more suffering, then it may be time to stop. Hospice can keep her comfortable without the IVs, without the restraints, without the trauma. They can keep her mouth moist, manage her pain, and let her go in peace. I know this is the hardest decision you will ever make, but please know that you are not alone. So many of us have stood where you are standing, and we have chosen to let go. If you want guidance and reassurance, please check out that book. It helped me find the courage to make the right choice, and I believe it will help you too. Sending you so much strength and holding you in my thoughts ❤️.