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2 1/2 years in HOSPICE she’s not getting better and I have to have help and don’t know what to do after the doctor suggested that there was fraudulent activity. I can barely roll my mom over to change her anymore.
Hi Artgirl. I just want to chime in that my LO has been on hospice in for over 2 years at this point and counting. Her decline has been a very gentle sloping one, but decline nevertheless. The first hospice comapny that we worked with discharged her after less than a year. The second one (our current one, which is thru the hospital in our area) has had her for 1.5 years, and they are wonderful. They do what the first did not do: they take note of every symptom and decline that we mention to them, in addition to the ones that they notice on their weekly visits. This is what the first hospice co. should have done, but I think they were looking for the big declines, not the small incremental ones. Is there another hospice agency that you can invite to do an assessment of your mother? I am sorry you are having to deal with this. Its challenging enough to care for someone at home, without having hospice support snatched out from under you.
Hello! I am glad for you that you found a second hospice to care for your LO. I am interested to know how this process went for you. Was it difficult to qualify for a different hospice when the first one had discharged your LO? Did you just call and ask the second hospice for an eval?
Artgirl, from your replies below -- just because your promised your father to keep your mother at home, doesn't mean that is the best place for her to be, with a family member who can't manage her needs physically. That is NOT a criticism of you, it's the simple reality that additional help is needed and that being isolated in a remote area without the ability to hire trained, skilled caregivers makes the situation unsustainable. Look into facilities that are equipped to provide what she needs. I hope you will be pleasantly surprised, and relieved. It won't be abandoning her, it will be providing what is necessary for her. I know this is challenging and hope you will find the right solution. Let us know how it goes.
According to your other post, Hospice evaluation did not access your mother to be within 6 months of end of life and with no decline in health Hospice was withdrawn.
Your what to now is that you either place her in a Long Term Care Facility with her going on Mediciad LTC or you will need to pay for services to help care for her at home. You can apply for community need Mediciad if you wish to keep her at home and age in place.
Contact social services in your county, if in US, and ask for assistance. And, you can consult with an eldercare attorney with knowledge in Mediciad Long Term Care to help you navigate the process that will need to be done for services. Are you POA, Health Care Proxy and have authorization on her bank accounts to conduct the financial aspect of her bills.
There is much more information needed to guide you to the correct departments and avenue to help your mother. Every person has an unique set of circumstances that prevent this forum from giving you step by step directions. Every state has their set of regulation that is why you need your county social services assistance.
Dementia can last for years. Hospice did not come in for my Mom until she was actively dying. To receive Hospice for Dementia a doctor has to say the patient only has 6 months to live. PHN is considered chronic but not life threatening. From what I read, it can become debilitating though. Just being bed bound does not mean Hospice is needed.
The fraud may be because the Hospice has been falsifying Moms reports to Medicare so they can continue getting paid. Medicare determines if Mom stays on Hospice and they must feel she is not dying in 6 months.
You being paid by Medicaid and Mom getting Aid and Attendance...both are government programs and I don't think Mom can have both. You can get paid from the A&A or pay an aide. For you to get paid by Medicaid, Mom probably has to drop the A&A.
When you told Dad you would keep Mom in her home, he had no idea what that entailed. Your Mom needs professional care. You should talk to Moms Medicaid caseworker and see if Mom can be taken from in home care to LTC. You will still need to drop A&A but should get $90 for her Personal Needs Acct.
You could also ask caseworker about you continuing to be her paid caregiver under Medicaid if you drop A&A, if you want to keep her home.
Sounds like it's time to have your mother placed in a skilled nursing facility where she will receive the 24/7 help that she now requires. And if money is an issue then you'll have to apply for Medicaid for her.
I promised dad she would die in her home - if I did what you said now we would have been out of money for care - who knew she was not going to die in 6 months
Jez wow -? Seems discarding parents is a thing on this channel
Your note is confusing. She say she has been "in Hospice for 2 1/2 years". There are few in-facility Hospice organizations now, but apparently you found one? Hospice is, in fact, end of life care. It means that you have fewer than 6 months to live in the opinion and evaluation of your doctors. If you do NOT die within that time it can occasionally be renewed, but it's unlikely to removed over and over again when you are clearly NOT in a dying stage of any kind.
Apparently you have accepted your mother home and now cannot manage care. It is time now to call APS and discuss all this with them, telling them you cannot physically in any way manage care in home. Your mother will be placed in care according to her assets. If there are no assets then application for Medicaid will have to be filed.
As to the "fraudulent" part of this, we have no details from you, so couldn't comment. Good luck.
I can manage care with help - I have a home already- I don’t need my mother’s home? You sound like the new hospice accused me of fraudulent care?? Are you a health care assistant or just talking to talk? I’m looking for help to get my mom to heaven in her own time? Maybe read above on more details - seems we are being punished because she outliv d the business side of death
Art girl, hospice only provides bath aides twice a week but changing occurs multiple times a day. Why is that harder now than it was? Is it because mom has run out of pain meds?
Your mother's condition does not specifically qualify her for Hospice. Hospice is not a caregiving service. Perhaps the Hospice service she has been on has falsified her records in order to keep getting paid for having her enrolled. You need to arrange care for your mother, probably in a care facility. That does not involve Hospice unless your mother is expected to die within 6 months and being bedround does not mean she is dying.
“I promised dad she would die in her home” is a lot like the promise “till death do us part’ (or words to that effect) in the marriage service. It doesn’t stop divorces.
OP, I also had Mom enrolled in hospice in a remote area without many options.
Pick up the phone and call the hospice. See if they can send an RN out to check on her to get her reenrolled in hospice. In our remote area we could self refer to hospice.
It sounds like the doctor that made the comment thinks hospice was keeping her fraudulently enrolled to bill the government.
By proceeding, I agree that I understand the following disclosures:
I. How We Work in Washington.
Based on your preferences, we provide you with information about one or more of our contracted senior living providers ("Participating Communities") and provide your Senior Living Care Information to Participating Communities. The Participating Communities may contact you directly regarding their services.
APFM does not endorse or recommend any provider. It is your sole responsibility to select the appropriate care for yourself or your loved one. We work with both you and the Participating Communities in your search. We do not permit our Advisors to have an ownership interest in Participating Communities.
II. How We Are Paid.
We do not charge you any fee – we are paid by the Participating Communities. Some Participating Communities pay us a percentage of the first month's standard rate for the rent and care services you select. We invoice these fees after the senior moves in.
III. When We Tour.
APFM tours certain Participating Communities in Washington (typically more in metropolitan areas than in rural areas.) During the 12 month period prior to December 31, 2017, we toured 86.2% of Participating Communities with capacity for 20 or more residents.
IV. No Obligation or Commitment.
You have no obligation to use or to continue to use our services. Because you pay no fee to us, you will never need to ask for a refund.
V. Complaints.
Please contact our Family Feedback Line at (866) 584-7340 or ConsumerFeedback@aplaceformom.com to report any complaint. Consumers have many avenues to address a dispute with any referral service company, including the right to file a complaint with the Attorney General's office at: Consumer Protection Division, 800 5th Avenue, Ste. 2000, Seattle, 98104 or 800-551-4636.
VI. No Waiver of Your Rights.
APFM does not (and may not) require or even ask consumers seeking senior housing or care services in Washington State to sign waivers of liability for losses of personal property or injury or to sign waivers of any rights established under law.
I agree that:
A.
I authorize A Place For Mom ("APFM") to collect certain personal and contact detail information, as well as relevant health care information about me or from me about the senior family member or relative I am assisting ("Senior Living Care Information").
B.
APFM may provide information to me electronically. My electronic signature on agreements and documents has the same effect as if I signed them in ink.
C.
APFM may send all communications to me electronically via e-mail or by access to an APFM web site.
D.
If I want a paper copy, I can print a copy of the Disclosures or download the Disclosures for my records.
E.
This E-Sign Acknowledgement and Authorization applies to these Disclosures and all future Disclosures related to APFM's services, unless I revoke my authorization. You may revoke this authorization in writing at any time (except where we have already disclosed information before receiving your revocation.) This authorization will expire after one year.
F.
You consent to APFM's reaching out to you using a phone system than can auto-dial numbers (we miss rotary phones, too!), but this consent is not required to use our service.
Your what to now is that you either place her in a Long Term Care Facility with her going on Mediciad LTC or you will need to pay for services to help care for her at home. You can apply for community need Mediciad if you wish to keep her at home and age in place.
Contact social services in your county, if in US, and ask for assistance. And, you can consult with an eldercare attorney with knowledge in Mediciad Long Term Care to help you navigate the process that will need to be done for services. Are you POA, Health Care Proxy and have authorization on her bank accounts to conduct the financial aspect of her bills.
There is much more information needed to guide you to the correct departments and avenue to help your mother. Every person has an unique set of circumstances that prevent this forum from giving you step by step directions. Every state has their set of regulation that is why you need your county social services assistance.
Dementia can last for years. Hospice did not come in for my Mom until she was actively dying. To receive Hospice for Dementia a doctor has to say the patient only has 6 months to live. PHN is considered chronic but not life threatening. From what I read, it can become debilitating though. Just being bed bound does not mean Hospice is needed.
The fraud may be because the Hospice has been falsifying Moms reports to Medicare so they can continue getting paid. Medicare determines if Mom stays on Hospice and they must feel she is not dying in 6 months.
You being paid by Medicaid and Mom getting Aid and Attendance...both are government programs and I don't think Mom can have both. You can get paid from the A&A or pay an aide. For you to get paid by Medicaid, Mom probably has to drop the A&A.
When you told Dad you would keep Mom in her home, he had no idea what that entailed. Your Mom needs professional care. You should talk to Moms Medicaid caseworker and see if Mom can be taken from in home care to LTC. You will still need to drop A&A but should get $90 for her Personal Needs Acct.
You could also ask caseworker about you continuing to be her paid caregiver under Medicaid if you drop A&A, if you want to keep her home.
Jez wow -? Seems discarding parents is a thing on this channel
Apparently you have accepted your mother home and now cannot manage care.
It is time now to call APS and discuss all this with them, telling them you cannot physically in any way manage care in home.
Your mother will be placed in care according to her assets. If there are no assets then application for Medicaid will have to be filed.
As to the "fraudulent" part of this, we have no details from you, so couldn't comment.
Good luck.
Pick up the phone and call the hospice. See if they can send an RN out to
check on her to get her reenrolled in hospice. In our remote area we could self refer to hospice.
It sounds like the doctor that made the comment thinks hospice was keeping her fraudulently enrolled to bill the government.
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