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I’m in NY. My Pace program seems to struggle getting me homecare aides so I can discharge from this jail of a nursing home. I’m literally held prisoner/hostage. 10 weeks ago they finally started the process, which should have been done (discharge) 3yrs ago. Catholic Health is in charge and I believe they’re taking their time on purpose in an attempt to wear me down and force me to surrender my home and freedom so they can collect 14k per month. I endure verbally abusing staff, poor quality food and poor quality staff. I woke up one day with facial pain and full rh side of my face bruised. Nobody even asked for an x-ray. They didn’t even notify my healthcare proxy. A nurse supervisor known as wicked witch constantly verbally abuse is disgusting. She’s mean, lazy and gas lighting. Complaints to NY DOH go unanswered. It's criminal here✌️♥️🙏

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I’m so sorry that you aren’t receiving proper care. Have you spoken with the DON at the nursing home or your ombudsman in your area?
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You may not like this response but I'm going to say it anyway because it may benefit you.

If you do end up going home with the help of homecare aides, you may want to consider trying to be a little more appreciative, and a little less demanding and more considerate of aides who work for poverty wages, or you may find your situation at home will not be much better.
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Hopeforhelp22 Sep 2023
Hi mstrgill - With what little you know of this situation, I personally don't feel your response was kind or appropriate. And I didn't see how it was going to benefit the OP - really. You have no idea what this OP has endured or the conditions they are in - so maybe you should try a little compassion.

And to jeffpkd - I'm sorry to hear what you're going thru - and I hope your situation changes soon and you can return home and find comfort. I don't know the system - possibly if others can suggest any charitable organizations that you can reach out to as an advocate or support in helping you thru this, maybe it can help.
Wishing you all the very best and continued strength ~
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jeffpkd, are you a Medicaid recipient?
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As far as I know you can sign yourself out of a nursing home anytime you want and go back to your home. Now the question is can you take care of yourself in your home? Having full time round the clock aides will be a lot more expensive than the 14K a month you are paying at the nursing home. Do you have family advocating for you?
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Here's ur 2nd post. https://www.agingcare.com/questions/im-confused-about-a-parkinsons-disease-speech-issue-483489.htm

Are you talking about u in this post or your friend. Please, do not write in 3rd party its very confusing.

I would say that you/friend is 24/7 care. That the Pace program cannot guarantee 24/7 care. The NH cannot release a resident to their home without having 24/7 care in place. And the home is handicapped accessible.
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Obviously none of you have dealt with Catholic Health. Must be nice to take the side of the establishment and gaslight someone with lived experience in nursing home/caregiver matters directly effecting myself.
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JoAnn29 Sep 2023
Jeff, we are a forum of caregivers. Most of us have dealt with NHs with our parents. What I said is a law. No NH can release a resident who is considered 24/7 care and that care is not available to them in their home. Medicaid does not usually supply 24/7 care in the home.

If you feel you are being mistreated, call your State Ombudsman and have them investigate. Call your County Adult Protection Agency.
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jeffpkd

Many NHs do suck don't they?

Have you talked with the social worker or has he/ she visited you in your room?
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To answer your question, yes there is a massive shortage of home healthcare aides. Especially in larger cities (unsure if you live in NYC or NY State), but it's the same almost everywhere.

It's a long, thankless, and physically demanding job that pays very little, so very few want to do it. The demand literally grows and grows every day, and will continue to do so for the next 2 decades minimum.

Unless you're wealthy enough to offer up a higher wage, you're likely out of luck if you require 24/7 care.
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Double post
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