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Who are you caring for?
Which best describes their mobility?
How well are they maintaining their hygiene?
How are they managing their medications?
Does their living environment pose any safety concerns?
Fall risks, spoiled food, or other threats to wellbeing
Are they experiencing any memory loss?
Which best describes your loved one's social life?
Acknowledgment of Disclosures and Authorization
By proceeding, I agree that I understand the following disclosures:
I. How We Work in Washington. Based on your preferences, we provide you with information about one or more of our contracted senior living providers ("Participating Communities") and provide your Senior Living Care Information to Participating Communities. The Participating Communities may contact you directly regarding their services. APFM does not endorse or recommend any provider. It is your sole responsibility to select the appropriate care for yourself or your loved one. We work with both you and the Participating Communities in your search. We do not permit our Advisors to have an ownership interest in Participating Communities.
II. How We Are Paid. We do not charge you any fee – we are paid by the Participating Communities. Some Participating Communities pay us a percentage of the first month's standard rate for the rent and care services you select. We invoice these fees after the senior moves in.
III. When We Tour. APFM tours certain Participating Communities in Washington (typically more in metropolitan areas than in rural areas.) During the 12 month period prior to December 31, 2017, we toured 86.2% of Participating Communities with capacity for 20 or more residents.
IV. No Obligation or Commitment. You have no obligation to use or to continue to use our services. Because you pay no fee to us, you will never need to ask for a refund.
V. Complaints. Please contact our Family Feedback Line at (866) 584-7340 or ConsumerFeedback@aplaceformom.com to report any complaint. Consumers have many avenues to address a dispute with any referral service company, including the right to file a complaint with the Attorney General's office at: Consumer Protection Division, 800 5th Avenue, Ste. 2000, Seattle, 98104 or 800-551-4636.
VI. No Waiver of Your Rights. APFM does not (and may not) require or even ask consumers seeking senior housing or care services in Washington State to sign waivers of liability for losses of personal property or injury or to sign waivers of any rights established under law.I agree that: A.I authorize A Place For Mom ("APFM") to collect certain personal and contact detail information, as well as relevant health care information about me or from me about the senior family member or relative I am assisting ("Senior Living Care Information"). B.APFM may provide information to me electronically. My electronic signature on agreements and documents has the same effect as if I signed them in ink. C.APFM may send all communications to me electronically via e-mail or by access to an APFM web site. D.If I want a paper copy, I can print a copy of the Disclosures or download the Disclosures for my records. E.This E-Sign Acknowledgement and Authorization applies to these Disclosures and all future Disclosures related to APFM's services, unless I revoke my authorization. You may revoke this authorization in writing at any time (except where we have already disclosed information before receiving your revocation.) This authorization will expire after one year. F.You consent to APFM's reaching out to you using a phone system than can auto-dial numbers (we miss rotary phones, too!), but this consent is not required to use our service.
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Mostly Independent
Your loved one may not require home care or assisted living services at this time. However, continue to monitor their condition for changes and consider occasional in-home care services for help as needed.
Remember, this assessment is not a substitute for professional advice.
Share a few details and we will match you to trusted home care in your area:
How do I know what stage of PD my dads in? Happening so fast, don’t know what to do?? How do you know if it’s meds or the desease if his behavior changes within weeks?
There are about 50 kinds of dementia, and someone with Parkinson's could have any of these. A person could have both Parkinson's and Vascular dementia, for example. But the usual combination is Parkinson's and Lewy Body Dementia. In fact, the researcher who found the "bodies" of misformed protein that were then named after him was working on brains of patients who had had Parkinson's disease.
If a person first exhibits the physical symptoms of Parkinson's and then later also displays dementia symptoms, the disease is usually labeled Parkinson's Disease with Dementia (PDD). If the dementia symptoms come first and the person also has Parkinson-like symptoms or if those develop later, the label is usually Lewy Body Dementia (LBD). These technical details are not important for the caregiver, but it may help you understand why you can't look up on a chart and determine, "Dad is half way through stage x." The disease he has is just too complicated for that.
If Dad's symptoms get worse, it is usually from one of these causes: 1) A drug side effect. This would usually be a new drug or a change in dosage, but could occur with a drug that's been used a long time. The fix here is to make adjustments to the drugs. 2) An illness. UTIs are notorious for making dementia symptoms worse, or even mimicking dementia symptoms in people who don't even have dementia! Other infections or illnesses can have similar effects. When the illness is treated, the symptoms go back to baseline -- what they were like before the illness began. 3) Progression of the disease. This is not reversible. The symptoms will not go back to baseline. But there may be ways of treating the new symptoms to minimize them.
How will you know which of these is the cause in your dad's case? You may not be able to figure this out without a doctor's help. And even with help there may be a bit of "wait and see" involved.
It is VERY important that your father be followed by specialists who understand the complexities of Parkinson's with dementia. They should be able to provide you with literature and suggestions for support groups and perhaps hold seminars for caregivers occasionally.
Knowing a lot about your father's condition can help reduce your anxiety, and that will also be good for him.
Come back as often as you like, with specific questions. Other people on here have loved ones with Parkinson's and can share experiences when you describe particular issues.
By proceeding, I agree that I understand the following disclosures:
I. How We Work in Washington.
Based on your preferences, we provide you with information about one or more of our contracted senior living providers ("Participating Communities") and provide your Senior Living Care Information to Participating Communities. The Participating Communities may contact you directly regarding their services.
APFM does not endorse or recommend any provider. It is your sole responsibility to select the appropriate care for yourself or your loved one. We work with both you and the Participating Communities in your search. We do not permit our Advisors to have an ownership interest in Participating Communities.
II. How We Are Paid.
We do not charge you any fee – we are paid by the Participating Communities. Some Participating Communities pay us a percentage of the first month's standard rate for the rent and care services you select. We invoice these fees after the senior moves in.
III. When We Tour.
APFM tours certain Participating Communities in Washington (typically more in metropolitan areas than in rural areas.) During the 12 month period prior to December 31, 2017, we toured 86.2% of Participating Communities with capacity for 20 or more residents.
IV. No Obligation or Commitment.
You have no obligation to use or to continue to use our services. Because you pay no fee to us, you will never need to ask for a refund.
V. Complaints.
Please contact our Family Feedback Line at (866) 584-7340 or ConsumerFeedback@aplaceformom.com to report any complaint. Consumers have many avenues to address a dispute with any referral service company, including the right to file a complaint with the Attorney General's office at: Consumer Protection Division, 800 5th Avenue, Ste. 2000, Seattle, 98104 or 800-551-4636.
VI. No Waiver of Your Rights.
APFM does not (and may not) require or even ask consumers seeking senior housing or care services in Washington State to sign waivers of liability for losses of personal property or injury or to sign waivers of any rights established under law.
I agree that:
A.
I authorize A Place For Mom ("APFM") to collect certain personal and contact detail information, as well as relevant health care information about me or from me about the senior family member or relative I am assisting ("Senior Living Care Information").
B.
APFM may provide information to me electronically. My electronic signature on agreements and documents has the same effect as if I signed them in ink.
C.
APFM may send all communications to me electronically via e-mail or by access to an APFM web site.
D.
If I want a paper copy, I can print a copy of the Disclosures or download the Disclosures for my records.
E.
This E-Sign Acknowledgement and Authorization applies to these Disclosures and all future Disclosures related to APFM's services, unless I revoke my authorization. You may revoke this authorization in writing at any time (except where we have already disclosed information before receiving your revocation.) This authorization will expire after one year.
F.
You consent to APFM's reaching out to you using a phone system than can auto-dial numbers (we miss rotary phones, too!), but this consent is not required to use our service.
Happening so fast, don’t know what to do??
How do you know if it’s meds or the desease if his behavior changes within weeks?
There are about 50 kinds of dementia, and someone with Parkinson's could have any of these. A person could have both Parkinson's and Vascular dementia, for example. But the usual combination is Parkinson's and Lewy Body Dementia. In fact, the researcher who found the "bodies" of misformed protein that were then named after him was working on brains of patients who had had Parkinson's disease.
If a person first exhibits the physical symptoms of Parkinson's and then later also displays dementia symptoms, the disease is usually labeled Parkinson's Disease with Dementia (PDD). If the dementia symptoms come first and the person also has Parkinson-like symptoms or if those develop later, the label is usually Lewy Body Dementia (LBD). These technical details are not important for the caregiver, but it may help you understand why you can't look up on a chart and determine, "Dad is half way through stage x." The disease he has is just too complicated for that.
If Dad's symptoms get worse, it is usually from one of these causes:
1) A drug side effect. This would usually be a new drug or a change in dosage, but could occur with a drug that's been used a long time. The fix here is to make adjustments to the drugs.
2) An illness. UTIs are notorious for making dementia symptoms worse, or even mimicking dementia symptoms in people who don't even have dementia! Other infections or illnesses can have similar effects. When the illness is treated, the symptoms go back to baseline -- what they were like before the illness began.
3) Progression of the disease. This is not reversible. The symptoms will not go back to baseline. But there may be ways of treating the new symptoms to minimize them.
How will you know which of these is the cause in your dad's case? You may not be able to figure this out without a doctor's help. And even with help there may be a bit of "wait and see" involved.
It is VERY important that your father be followed by specialists who understand the complexities of Parkinson's with dementia. They should be able to provide you with literature and suggestions for support groups and perhaps hold seminars for caregivers occasionally.
Knowing a lot about your father's condition can help reduce your anxiety, and that will also be good for him.
Come back as often as you like, with specific questions. Other people on here have loved ones with Parkinson's and can share experiences when you describe particular issues.