She sits on the porch and forgets where she is. This is her house, she's been here for 50 years! They (her kids) really just want to help. Although I don't remember any of them having her stay over even one night prior to her dementia. Now they want to pack a bag and take her home with them for days. She is so lost when she gets home. Seriously tells us that she needs to get back home, or knows they're waiting on her...Going to go stay at grandma's. No limit to the nonsense, and she stands behind every word. Looking in every room because she knows that they're all here. Just a plain out exhausting and frustrating evening for her and for her son and I. I'm just the daughter in law. They sure don't want to hear from me. I'm an RN, worked with long term care for 6 years. I know a thing or two. One daughter and a long-time daughter in law are CNA's...they know what kind of chaos they're causing, but they didn't want to give up their weekends to stay with her anymore and by default (he's POA) Jeff and I got to abandon our home to be here for her. At first it felt like respite for us and we got to mow our grass and maybe have a cocktail. We soon discovered that we were packing up and moving 2,3, sometimes 4 times a week, and each time Mom's frustration increases. We caught wind of their private discussions of nursing homes and we made it clear that we have no interest in placing her in a home. If they privately want to give it up...Why must we play this game? Do they just need to be seen as the best kids? Is this guilt? Honestly I'm spread a little thin to cater to their insecurities.
If your husband is his moms POA, then at this point he should have the final say as to where and what his mom does.
Perhaps you can compromise and tell these family members that they are welcome to come stay at moms house for the week(or weekend)and that you and your husband will be away on a little respite.
And like daughter1930 said, it is never too soon to be discussing a plan B(nursing home) for moms care, as you never know what the future may hold. I wish you and your family the best in getting this all figured out.
He can thank them for wanting to show their love by hosting her but *in mom's best interests* she needs to have a staycation at her house and a strict routine which needs to be kept so that she doesn't get more confused and agitated than she already is. If they don't like this plan, oh well, it's the only plan that is acceptable. If they agree, then great! You guys get to have a much-needed break. I guarantee they will have a deeper understanding about everything you are doing and why. Your husband can also gently suggest they first view some Teepa Snow videos on YouTube so that his family comes to help with a fuller understanding about what dementia is, how it changes our LOs and how to better engage with our LOs so that things can go as good as possible. Hoping it all works out for your MIL and her family!
I also think it is a good idea to develop a plan B - NH/MC. You don't have to admit to anything just do some research and know what is available, what their policies are and what they cost.
Wishing you peace on this journey.