She has only been living with us for 6 weeks and I didn't realise she would make our lives a living h*ll. I get constant complaining about every aspect of care I give to her; nothing is good enough. Everything has to be done her way or she shouts & swears at me. Any food I cook isn't cooked properly and "tastes like muck" and has to be made late in the evening when I want to finally sit down!
I could write a book about her controlling and self contradictions.
My husband and son cannot bear to go in the same room as her because of her behaviour.
I am so stressed out and mentally and physically exhausted my brain is a mush
and I cannot make a decision, take in information from district nurses etc . I am at the end of my tether and totally regret offering to care for her and want her out of my home before she ruins our family life.
If Social Services has been involved, call your contact person. You don't have to give a reason or justify your decision. This is simply not working out and you will not be able to continue. She must be placed elsewhere as soon as possible.
If Social Services has not been involved, call and explain that Mom has been with you on a temporary basis and now you need help finding a more permanent solution. You'd like a needs assessment.
If your main contact for your mom has been a district nurse, call that person and ask for help in figuring out how to get mom placed elsewhere.
This won't happen overnight, but the sooner you start, the sooner it will be accomplished. Make the first calls today!
S he owns her own property and I have not got power of attorney so would not be able to sell it to pay for her care. The district nurse has said she is non complient to their advice as she has bed sores and swollen , painful legs through just sitting in a chair all day & most of the night.
I must admit I had a rant about her behaviour and said I feel like putting a pillow on her head; I hope they don't think I would really do that!
I feel racked with guilt as I have failed in not caring for her the way she would like.
So, six weeks in to her staying with you - are you still in touch with her discharge team from hospital? Have they handed over to your local social services? What's the set up? I'm in the UK so I'm familiar with the usual systems. Meanwhile be clear, though: you are not obliged to have your mother living in your house unless that is the solution you choose. It may take a bit of time and some fast talking, but if you want the situation changed you can change it.
So do you think if I say on Wednesday when I have a meeting arranged about her care assessment as she has nearly finished 6 weeks of free care that I don not want to care for her any more they will listen?
Does your mother express an opinion about her own wishes? Is she mentally competent? If she can be nudged towards telling her key worker that she wants to live independently (which could mean in sheltered or retirement housing, e.g.) that will help enormously. It will save you having to cross your arms and say 'over my dead body is my mother moving in here permanently' - which may be reasonable and true, but is not something anyone would like to say in her hearing :)
Now don't think that they will give support - you have to fight tooth and nail to get it and I know that first hand after actually telling the social worker to leave my house if she wasn't going to do her job. So it is now time to get a serious backbone for use on all fronts. For you are going to need it on all fronts.
You didn't realise she would make our lives a living h*ll.
Actually you probably didn't think she COULD either but they sure as hell can can't they?
If you are getting constant complaints from her about everything you do for her then I suspect this is nothing new to you but it is now on a higher plain than you have ever seen it before.
Terms of engagement - i.e. your house rules NOT HERS
Firstly remember you are in transition and I was bloody suicidal and I mean suicidal at this stage - I would gleefully have killed myself rather than deal with madam's bloody tantrums for that is what they are and if you don't stand up to them in an effective way then you are in for a very bumpy ride
Any food you cook is criticised and has to be made late in the evening when you want to finally sit down!
WELL TOUGH - Make her meal with yours and if she wants it later microwave it. If she complains tell her to buy it in there are plenty of deliver to the door food (meals on wheels type) that she can buy in AT HER COST. DO NOT BEND to her timing - they wouldn't in a care home. Stand firm on this one. And diary it
My husband and son cannot bear to go in the same room as her because of her behaviour. Then tell them this for they need to get a backbone too. Go in there, if she is rude tell her this I am leaving now because I will not tolerate you being so rude and then tell them to walk out immediately - don't engage in conversation - Oh and the same goes for you too
You need to see a doctor NOW re the stress - you don't have to take any meds he may prescribe but you need that visit in before you see social services.
Right now as to social services.
Call them and tell them you want a carer's assessment NOW - IMMEDIATELY.
Now they are going to try and fob you off with in a couple of weeks. NO - when they tried this one with me I said either you come out before the end of the week or on Friday at 4pm I will be delivering mother to you and leaving her there - your call.
When they try another tack repeat after me....you are not listening and not hearing me - I AM NOT COPING AND I WANT A CARER'S ASSESSMENT NOW.
If they try a third time then go this way - could I have your email address please? Get it first and then tell them you are informing verbally now but you will confirm in writing that the circumstances of care are malfunctioning, that you are not coping and that you are being denied your legal right to a carer's assessment when you have identified an immediacy to the Social worker.
It would only be one who wanted to lose their job and pension that wouldn't sit up and take notice
If that isn't successful and I would be surprised then call back and ask to speak to a senior manager - not any old manager but the senior manager and tell them you want an urgent appointment because your mother is at risk - say no more than that...then tell them that the trial period has shown that you cannot cope and therefore you decline to caregive to your mother. Then let them do what they get paid for!
PS stay strong and if possible have a friend who is a veritable Rottweiler with you. When they tried to talk over me (tactic to ride roughshod over everything you might say) my daughter was there and was really nasty. To quote - If you actually did your job and listened you would have a clue as to what the issues are but that would mean you would have to earn your pay wouldn't it - mind you she works for the police and was wearing uniform at the time so I imagine a little daunting for them!!!
Local authorities now have a legal duty to assess any carer who requests one or who appears to need support.
If you are a carer and you need some support, get in touch with the council covering the area where the person you care for lives. The council will be able to give you information and advice about how the assessment will work.
A carer’s assessment is a discussion between you and a trained person either from the council or another organisation that the council works.
The assessment will consider the impact the care and support you provide is having on your own wellbeing, as well as important aspects of the rest of your life, including the things you want to achieve day-to-day. It must also consider other important issues, such as WHETHER YOU ARE ABLE OR WILLING TO carry on caring, whether you work or want to work, and whether you want to study or do more socially.
I've got a social care meeting arranged next week about her continual care and I'm going to tell them I can't cope anymore. I reckon you're right thy will definitely try to persuade me to except a lot more carers to come in and help but it isn't looking after her that's the problem it's her dominating personality & I will hopefully convince them I've come to the end of my tether. I've been told they probably will offer respite care for a week to cool off but to say I don't want her back. It's sooo awful to think it's got to this; I don't know if I can go through with it as she'll be put in a horrid emergency care facility where they won't give a dam about her & she'll be neglected if she behaves rudely to the carers.
She will hate me forever; she said she doesn't want to ever go into hospital again as it will "see me off" so a home would be devastating for her.
You will resent her if she continues the way she is and your health will suffer.
If as a result of your stress levels you have a breakdown (or worse) she will have to go into care anyway BUT you will then not be in a position to support her
If she has cognitive decline she will forget she hates you
Is she someone who would understand if you did talk to her? I mean if you said Mum I am not going to tolerate your constant criticism and your rudeness - quit it or there will be no option for me but to stop caregiving to you because I am not going to risk losing my family because you are so horrid to me all the time...would she understand? would she change if she did understand?
If the answer there is no then you don't have an option.
She won't be NEGLECTED if she is rude to them but they will walk away from it - you cannot argue with someone who is hell bent on being vile. Plus it doesn't have to be a horrid care facility, you will still be able to have input as her daughter. presumably you will want her relatively close by. They will expect the house to be sold to pay for her care so you will have some horrible work to do there - a skip might be a good start!
As for care homes be prepared check on the CQC (Care Quality Commission) website for care homes near you and then have a look at the reports I will send you a link. xxx
Repeat: my mother does not live here. My mother does not live here.
There are other good options for her continuing care plan. Make it crystal clear that your home becoming her permanent place of residence is not one of them.
Taking care of a parent is horrible! Maybe not for all - maybe there is people out there who have parents that are wonderful and whom they love to bits! But surely you and me are not one of those lucky ones! Hope all the advise helps you and will help to find more suitable care for your mother. Please do not feel guilty - from one person feeling so terrible guilty to another!
Daughter duly trotted back to the kitchen with the plate, and returned with a down-sized helping. MIL rose to her feet, snorted "well, really! I've never been so insulted!" and swept from the room.
Just a plea to people to remember that these demands are *unreasonable.* They are *insanely* unreasonable, to the extent that they're almost a joke. It's bathos - eventually the stress must build up so much it'll collapse. Keep a grip on the real world, where what you do to help your elder is good and kind and fair - whatever they say about it.
Things are not that extreme in my home (yet?), and I have become overwhelmed many times with "finicky" and having to eat alone. Now, I fix his plate, fix my plate and leave him to his rituals related to food. As I read about your family event, and thinking of solutions for at home-can't they be given a meal-everyone leave-let them go hungry if they don't like it-sooner or later they may learn to just eat what was served? At least this worked for the children's eating in the movie 'Mommy Dearest', Lol, and our parents taught us at least how to eat what was served, not complain, eat everything on our plate, etc. Can't we somehow pay them back when they are acting like ungrateful children? I am just thinking out loud-ahead of time-if ever I am bedridden and don't have access to the salt and pepper.
There must be kinder techniques and procedures for caregivers to put into practice-maybe a jail cell door on the elder's bedroom-with an opening to slide the tray through, then run and hide? There has got to be a better way, as my heart goes out to the patients and especially the caregivers!
The situation is untenable and that's it. Time to find other accommodation for her and don't feel guilty about it. She has either brought this on herself, or, if her behaviour is the result of Alzheimers, the disease is to blame and not you. (It can sometimes be hard to distinguish which behaviour is personality and which is Alzheimers.)
Good luck.
CM and Sendme2help - I am back to square one all over again!
/google/ Where to buy a very strong jail door that can be fitted in a private home ......