My mom has a fib and on 3 meds that can work as blood pressure meds. Recently it went as low as 88/48. Her home health isn't concerned. She has rapid short term memory loss . CT shows no abnormalities and they say they see nothing indicating it's that. This past week she started going back to bed sometimes she sleeps, others it's up and down, my mom never does go back bed. She will say she is hot then 5 min later cold. She's constantly changing thermostat. Same with coffee, it's hot then it's cold back forth and she can't walk and weak. Now on top of an almost compulsion of hot/cold she she puffs and no reason to be. No one will help me find out what's happening. I read Lewy body dementia won't show in tests. Could this be what's happening? How do I go to nursing school then come home to her? Plus my dad is also there he's giving up cause he can't take what's happening to my mom. I'm gonna lose them both and I say within few months of the other. I don't know what to do and I go to school and watch these awful disease and toll thinking of my parents. I do great till they are in bed and I crumble. How do I survive this what toll will it have on me? Nobody understands or dealt with this and act like they can relate. I need someone who can I'm scared of all this.
I really do recommend you get through to your father, SOMEHOW, the necessity of placing BOTH of them TOGETHER in Assisted Living. I did that for my parents back in 2014 after dad broke his hip; neither of them were able to live independently any longer, and the stress of it all for me was horrendous. So, I feel your pain. Dad wound up passing away in 2015 & my mother till lives in Assisted Living to this day, in Memory Care now since last June. It's just too much to care for them alone at home and I don't blame you for being scared & upset. TELL that to your father & ask him to please be reasonable here, and not to expect you to deal with such a tremendous load yourself!!
Sending you a big hug and a prayer that your dad will stop being so unreasonable and that he'll allow you to look into Assisted Living for them. Good luck!
Have you considered having your mom placed in AL or NH? I’m not saying that being cruel but at one time was forced to make such a decision. It was a while back but my mom was deteriorating quickly and we could no longer manage her ourselves. It wasn’t helping her and I could see that it was killing my father. It was a difficult decision but one that had to be made. She went into a local NH where she had the 24/7 care and medical attention she needed and my father visited her every day. It may also give you the peace of mind to know they are both safe so you can continue school and not worry quite as much.
You definitely have a full schedule, but is it possible to go with your mom to her dr’s appt? Maybe schedule one for when you’re on spring break? It may make a huge difference for your mom and also give you peace of mind. For my dad, we opted for no further intervention for his Afib (dr recommended the watchman procedure) so we looked into palliative care. Ultimately we decided on hospice care and it’s been wonderful. Now I have medical staff that I can call any time, any day and he never has to leave the house. It’s been a God send.
Hoping something in our experience is helpful to you. Wishing you better days.