Follow
Share

My father, aged 69, who lives in South Carolina, suffers from advanced dementia accompanied by severe behavioral challenges, including aggression and wandering. He has been a resident in TWO memory care facilities in a little over a 1 month. Despite being labeled as "secure facilities", he has escaped multiple times thru windows and doors, placing himself in life-threatening situations.
I have now been issued a 30-day eviction notice from his current memory care facility only 5 days into admission. Despite exhaustive efforts on my part, including collaboration with hospice services, outreach to the Appalachian Council on Aging, and reporting the situation to Adult Protective Services (APS), I have been unable to secure a safe and suitable placement for him. APS has declined to open a case because he’s not technically homeless, leaving me with no viable options.
I cannot care for my father in my home due to his needs, his wandering, and his aggressive behavior, which would put my own young child at risk. He requires more specialized and secure care than I am able to provide. I got granted Guardianship over him back in Oct of this year, but as my attorney explained, it no way made me legally obligated to keep him in my home. My role is to advocate for his well being & whats in his best interest.
The facility Director has been calling me to go pick up my dad but my dads hospice social worker said to not go because then I would be assuming responsibility over him. And that the facility MUST legally (on a federal and state level) have a safety plan in place before they can discharge him or relocate him. What do I do? I don’t pick him up right? They must figure out what to do with him, correct? Any help appreciated

Find Care & Housing
Do not go pick him up. Once you do, "tag, you're it". It is bad enough that you are his guardian. I know you thought you were doing the right thing, but had you not been his guardian, then he would have gotten a court-assigned 3rd party guardian who would have found a medical or facility solution for him without your involvement. You may want to consult with an elder law attorney to see if there's any way you can terminate your guardianship since you could have never anticipated this untenable situation.

I'm also wondering why he isn't in a psych ward where he may get meds for his behavior? My 68-yr old cousin with ALZ was brought to the ER for aggressive behavior, confusion, delusions (and it turned out to be a UTI). Because she was refusing the antibiotics (and her poor son had to physically restrain her while she was driven to the ER) they put her in the hospital psych ward for a month until she eventually complied with medication and it had time to work. It worked. Ask about this option for your Dad.
Helpful Answer (6)
Reply to Geaton777
Report

What medications is he getting? Has he been prescribed any by a neurologist and if so, is he taking them? The right medications can make a world of difference.

You should insist that the facility should send him to a secure psychiatric ward where he can be properly diagnosed and prescribed adequate medications, and he should stay there until his behavior calms down enough for him to safely stay in a facility.

Do you know what his specific diagnosis is (form of dementia)?

Don't give in and take him home. That would not be safe for him, you, or your family.
Helpful Answer (3)
Reply to MG8522
Report
organicg89 Dec 24, 2024
He been on Zyprexa for about 2-3 weeks. Yesterday he started ABH (ativan/benadryl/haldol) cream as needed, Long lasting Haldol shot & Dapakote 3 times a day. He doesnt have a specific dementia diagnosed, his paper work just says “Unspecified Dementia”.
(0)
Report
I agree not to pick him up and not to assume responsibility.
I am sorry you took on guardianship because you cannot resign and only a judge can relieve you and they never will.

I would tell them you have no where for him to go and that they cannot do an unsafe discharge. They will then to forced to send him to hospital which will be forced to place him in locked facility and try for med cocktails that may help him.

Just be certain to say you have no place for him and he is unsafe, a danger to himself and to others and that you are neither mentally, physically, emotionally or intellectually capable of caring for him.

Wish you had come here before accepting guardianship, because that's a problem. They can start to accuse you of abandonment of overseeing his care. I would see an elder law attorney were I you at this point. He is badly in need of medical assessment and medications.
Helpful Answer (3)
Reply to AlvaDeer
Report

I would check with your attorney, just to be on the safe side. You definitely don't want him discharged to you, so be firm.
What might have to happen is that he get admitted to a psych ward so that his meds are adjusted. No facility will want him until that's fixed.
Helpful Answer (1)
Reply to ElizabethY
Report

Has dad been evaluated by a geriatric psychiatrist??? He needs medication to calm down his aggression big time. No facility is going to want him until and unless his behavior is controlled with meds. I would demand the current facilty send him to the hospital for a psych evaluation immediately.
Helpful Answer (1)
Reply to lealonnie1
Report
organicg89 Dec 24, 2024
He was sent to the ER twice this month by police who picked him up and because his behavior stems from his Dementia they refuse to admit him into Psych.
(0)
Report
Thank you for sharing this scenario as I see this happening to my father eventually. I worry about the day I might make decisions like this as I have already had to involve authorities with my father's unwillingness to participate in the care of his disease.

I had this happen to a family on hospice where the husband with lewy body dementia became violent, he got evicted by an adult family home. The AFH could not send him on to the street like that as the state will show up and investigate as to why he did not get treated at a Geri Pscyh ward. The AFH did not want to make those arrangements as the state gets involved in that too, and often the person won't get discharged back to the community unless they go on hospice.

Just getting on hospice means he became a vulnerable adult, he has rights as do you. Hospice a daily benefit so talk to the social worker daily about his rights to care.

He then became so violent at home, family had him hospitalized for over 12 months because the hospital could not find placement for him. They said they learned their lesson the hard way and like a broken record this time they said they could not take care of him safely at home.

The daughter a nurse, and the wife chose this together, and with much guilt and sadness but they had to make the right choice. Finally he got on the right meds and got placed in a pure medicaid community, quite depressing, but better then on the streets or harming himself or someone else.

This person on and off hospice for about two years as he continues to show enough decline. I would talk to the social worker and nurse nonstop about how to get the psych ward set up, demand it and report the community for not fulfilling their "negotiated" care plan. Refuse to take him home with you.
Helpful Answer (1)
Reply to PennyAmes
Report

Sympathy for your difficult situation, but please could you explain:
- “I have been unable to secure a safe and suitable placement for him”. Have you turned anything down as not ‘suitable’ – particularly drugs? What have you been offered, if anything?
- “APS has declined to open a case because he’s not technically homeless”. APS doesn’t usually require someone to be homeless before they get involved. Do you know why this has happened? Have APS made any suggestions for you to pursue?
- Does F own ‘your home’? Or is he the renter?

I hope that you can provide more details about this difficult situation, so that practical suggestions can be offered.
Helpful Answer (0)
Reply to MargaretMcKen
Report
organicg89 Dec 24, 2024
I havent turned anything down. I’m extremely open to anything they’ll offer. He’s currently on Zyprexa, ABH cream, Long lasting Haldol shot & Dapakote.

APS here said they did require him to be homeless in this case unless I suspected abuse, neglect or exploitation.
(0)
Report
You were given a 30 day notice so can't evict till then.

Is Dad on meds for his aggression? Maybe he should be placed in a Psychic facility where they can monitor him and experiment till they find the correct meds. Then you place him in Long-term care that has a lock down. MCs are really not equipped to care for someone with these problems.
Helpful Answer (0)
Reply to JoAnn29
Report
organicg89 Dec 24, 2024
Yes he’s on Zyprexa, ABH (ativan, benadryl & haldol) cream (as needed), long lasting Haldol injection & Depakote (3 times a day).
(0)
Report
You could ask the doctor to prescribe Seroquel also. It doesn't seem right that he wasn't able to get onto a psych ward. Is there more than one hospital near you? Can you try to get him admitted to a different one?
Helpful Answer (0)
Reply to MG8522
Report

He will be technically homeless now if mc evicts him, so now is the time to call APS again. In other words, you don’t have to agree to take him home with you. But that’s your choice.
Helpful Answer (0)
Reply to mstrbill
Report
mstrbill Dec 25, 2024
Just to add, please listen to your attorney and hospice SW. They have given you the correct and best advice. Do not pick him up, call APS, the ombudsman, and the state dept of aging and let them know the situation. Do not pick him up, that would be a dangerous situation for all involved.
(1)
Report
Ask a Question
Subscribe to
Our Newsletter