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My mother recently had a stroke. While in the hospital she was diagnosed with pre-Alzheimer's. She was lucky with the stroke and is doing well. However, she lives out of state on her own as my father passed away two years ago. My sister and I both live out of state. I am with my mother now trying to help and line things up before I have to leave. My sister is living her life and not really present in this. She has three children (in college and high school). I do not have children. I feel she views me not having children as me having time for all of this. Even if I was not here, I still do not think she would be present. She does call my mother and my mother can really see no wrong in her. I worry about leaving my mother. She does not want outside help right now. I cannot communicate with my sister.

Dec1470 — You will find PLENTY of posts on here similar to yours. Here’s a new one from a woman who has been taking care of her mom for 15+ years and siblings are not helping:

https://www.agingcare.com/questions/what-does-one-do-when-their-3-siblings-who-live-less-then-an-hour-away-dont-make-an-effort-to-visit--499341.htm

Also, I don’t know what “pre-Alzheimer’s” means legally speaking. Maybe mild cognitive impairment? If she hasn’t set up POA and health care proxy already, she may no longer be legally competent to do so.
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Reply to Suzy23
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Anything you do to take care of your mother is up to you. Your sister is showing you she is not going to do any of it. Since you both live out of state from your mother it is going to be difficult to keep up with all that she needs as her Alzheimer's progresses. I wonder about the lining things up. What are you lining up for her? House keeping help now, home care when she needs it, doctor appointments, finances, her will, POA, etc? How will you know when home care is needed if you are not there? Are there other family members or friends closer who can look in on her to determine her needs? She may not know what she needs or admit to needing help. It's a huge responsibility and I'm fairly certain doing it from a distance will not be possible in the years to come. You are only at the beginning of this and already feel resentment. Perhaps it will become easier as you accept it all or maybe you simply do not wish to do it. If you do not, there are other options. As time marches on the situation will hopefully become clearer to you as to how much you can and wish to do. There's is a lot of helpful guidance on the subject of caregiving. It is difficult, time consuming, emotionally draining, but can possibly be very meaningful as well. I hope you come to terms with your own capabilities without self judgement and without judgement on your sister. Do try to engage with her as to what is happening and what you have done and see what her response is, then accept whatever she is or not willing to contribute. And ask questions here on the forum or call the area agency on aging where your mom lives.
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Reply to ArtistDaughter
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Unless you are moms POA neither you nor your sister have any say as to what mom should or shouldn't do. It's as simple as that.
Mom will now have to live with the decisions she makes, and you'll have to be ok with that.
Your sister has her priorities in order with putting her children and her marriage(if she's married) first, and has made her choice to not get involved.
You are the one who chose to step up and try and help your mom and now you're complaining that sister won't help.
You are only responsible for yourself and only have control over the choices you make, so quit trying to control the choices that your sister has made.
I guess if you give your mom the choice of either in-home care or moving into a facility(where she'll probably end up with her dementia eventually anyway)she may be a bit more open to hiring in-home help for now with her money of course.
I wish you and your mom well in getting her care figured out before you go back home.
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Reply to funkygrandma59
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AMBZebb is so spot on.
Time is of the essence. GET THE POA Done now.
I find that for some reason, one child usually ends up with the job of making or doing more than the other siblings..
In the end, it's an honor, I wouldn't change it.. 😌🙏
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Reply to MAYDAY
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My siblings and I discovered in middle age that the same things our dad was criticizing to each of us, were the things that he was telling our siblings we were doing better than them. Your sister might feel like your mother can see no wrong in YOU.

Even if that's not the case, what matters is that you don't upend your own life for your mother out of obligation. The most important thing is that your mother give her POA to someone, so that person can help with her decisions. This will become more essential as time goes by and she declines. At a certain point she will not be considered competent to do this, so the sooner, the better.

Don't let your mother make the assumption that because you don't have children, you will be available for her to take over your life as her needs increase. She doesn't want outside help, but that doesn't entitle her to make excessive demands on you. At various points you will probably have to make decisions. Make them carefully, based on reality, not good intentions or wishful thinking.
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Reply to MG8522
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This is a common occurrence and complaint with many. You are not alone in feeling the way you feel.

Now is the time to have a heart to heart with your mother about POA, Medical directives and what her desires for aging are. You can suggest assisted living but without your mothers agreement you cant force her into amything yet.

You need to know your limits of what you can provide with eldercare needs.

I suggest looking for a geriatric care case manager that is local to help coordinate all needed for your mother if she refuses to move into assisted living. This can get pricy, is your mother able to afford this long term? I do not advocate paying for your mothers expenses if she is on a very limited income. And never promise you will not "put her in a home", that is never what anyone wants but may be necessary in the future.

Above all you need to make yourself a priority with mental and physical wellbeing. As a person that is under stress with tending with an declining parent it does take a toll on your health.

If your mother establishes that your sister and you are POA together DO NOT ACCEPT this and politely decline with the notice that you will not provide any caregiving unless you are the only POA. Joint POA should never be a consideration. This may seem harsh but singular POA is hard enough. If you become or are POA it will need to be conducted in a manner very similar to a business plan. Emotions can't lead the way because it will be criticized and critiqued by many outside people who think they know best.

I wish you luck and hope that you remain on the forum. It is a wealth of knowledge.
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Reply to AMZebbC
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I agree with Hothouseflower. One of the most common issues we see on this forum is “how to make sibling(s) help parent(s) more” or the “fairness” issue. I know of one family of 5 siblings where each do an equal share. My husband and his two sisters divided up the work when it came to their mom fairly equally, and yet the youngest still claimed to be an under appreciated martyr.
And in many or most cases including my own, one child (me) steps forward and does 90-100% of the work and the other does little or nothing.

The truth is caregiving is an entirely voluntary choice. Some feel obligated or compassionate or whatever you want to call it. Others do not and nothing you say or do can change it. Everyone has their own circumstances and priorities. Therefore, your only choice is to accept it.

We also frequently hear “I do 99% of the care and yet the house / inheritance is set to be split equally” (again, this is my situation). This is the same “it’s not fair” issue. Again, usually mom and dad make their decisions about their wills and such without regard to caregiving thoughts. And, they legally can’t change their wills once dementia sets in. Plus, all their assets may be spent on care and the house may be sold to pay for assisted living and other care. So again, my recommendation is do what you think is best, but don’t assume anyone else will have the same attitude that you do. And don’t assume you will be “rewarded” for what you choose to do. Sometimes it happens. But it’s not at all a given.

Don't let anger and bitterness eat you up. It changes nothing and makes everything worse.

So, what should you do? Tell mom you know it’s scary and upsetting to face this. But you can’t be her full-time caregiver and sister is also not going to do it. So mom either needs home health aides or to move to assisted living. Tell her to what degree you are willing and able to help arrange these. Hardly anyone wants outside help. That doesn’t mean they don’t need it. Don’t sacrifice your own life.
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Reply to Suzy23
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Your sister is living her life and has shown you she is not going to be caring for your mother. She has children living at home and she is probably working to pay for college. Right now these kids are her priority.

You have no control over her decisions, only your own.You need to figure out your next steps, minus your sister. Do not have any expectations that she is going to be helping going forward.

Your mother does not want outside help, so that's that. She will need to accept the consequences of that decision. I had a similar situation with my parents who were in their 90s. I had to realize I had no control and needed to accept that they were driving their bus. Eventually they did agree, but they had to arrive at that conclusion on their own.

Maybe at some point you can encourage your mother to move closer to you. Perhaps you should explore some assisted living options near you.

And yes, mothers do have favorites unfortunately. And they usually are the ones who don't help. It is easy to be resentful about it but that's just the way it is. There are lots of posters here who will tell you that.
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Reply to Hothouseflower
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