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We are both 77 and live in a 55+ community that we love. Husband was diagnosed ten years ago with MCI and has been on xarelto (stent), metoprolol (afib), memantine (MCI), and Rivistigmine patch (MCI), CoQ10, D, vitamin and probiotic since then. His decline has been blessedly slow with all ADLs still in place except taking meds. His short term memory however is totally non-existent and he makes no new memories. I want to move to a CCRC now while we can still hopefully pass the financial and medical tests, but he is adamant that he wants to stay put and hire someone to live here if needed. (He denies he has dementia.) From those in our community how tried the hiring route, I know it’s constant, stressful, difficult and expensive undertaking that neither I nor my daughters can undertake. Any helpful suggestions or things that worked for you about how to convince him we need to go now, without causing an ongoing argument? One friend suggested making about “me” needing to go now, even if it involves a little lying.

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I am so sorry for you but I completely understand where your husband is coming from because we went through it with my Alz mom. She had lived in her house since I was a small child and knew every inch of it. One of the reasons she would always give was that she was so familiar with it and, truthfully, I sort of waved it away. It never occurred to me that one reason for her fear was deep down she thought it might be hard for her to navigate in a new environment. She is in the AL not MCI and she is physically healthy--probably better than 90 percent of the patients--but her short term memory is also shot. I sometimes try to imagine how frightening it must be to not really understand what is going on around you because you have forgotten the explanation just given to you (and the dozen just before). We are extremely fortunate that she is still generally pretty happy and usually in a good mood. In fact, after an initial adjustment period, her mood has really improved.
Just based on what you wrote above, I think you should decide if moving to a continuing care place is something you personally would like to do and, if so, just make the arrangements and do it. Don't discuss or negotiate with your husband--completely useless because he will forget it as others have pointed out. Or just do it once so in the future you can truthfully say "we already discussed this" as a last resort when you need to shut down the conversation for your own sanity. And then I would move in and say it is temporary for some made up home maintenance reason and when he asks when you are going home just keep deferring. My mom still asks when she is leaving--she has been there the better part of a year and still thinks she is in a hotel--but she has lost track of time. And honestly, at first she asked all the time but now it is infrequent. It mostly comes up when we take her out for a few days and then are bringing her back. Good luck my thoughts are with you. My mom and her sister had Alz and my husband's mom died from it and we are starting to make plans for what happens to us when we have it so our children don't have to deal with managing our care.
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Reply to Jennyjenjen
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It is about you and your future. That's not a lie. Tell him you need to move and are taking him with you. You will be happier and safer when he has the care he needs from professionals.
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Reply to JustAnon
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The sooner you move in, the more time you two will have to enjoy the amenities that draw people to ccrcs. The one where my dh worked had bocce ball, a putting green, a warm water pool, gym with classes and two restaurants. The one that my cousin’s parents were looking at would have been perfect 10 years back when the dad was still golfing. It’s almost as if they waited too long.

I would also look very carefully at what a CCRC specifically offers in terms of dementia care. Very rarely do they offer a locked unit. Disruptive residents can be thrown out. Same goes for those requiring skilled nursing.
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Reply to PeggySue2020
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He can no longer make informed decisions. You do what you feel is the best thing for both of you. I like making the excuse that you need the help. And really you do. You need help to care for him.
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Reply to JoAnn29
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I agree with the making it about you idea. I could get my (stubborn) husband to do things he normally refuse to do if I made it like I was the one that needed help. "Can you use the walker, I can put all my stuff in the basket and you can watch it while I do....." and he would take the walker. Pretty soon I stopped asking him to take it because it was normal for him to use it.
And it may not even take lying about it. I am sure there are plenty of things that normally you would ask him to do but are now doing yourself.
Now if your husband is a "numbers" person sitting down with pen and paper (yes old school method)
Write "Pro's and Con's
If you are paying for many household expenses most of those will be included in the CCC
You might be able to reduce insurance on your car if the CCC provides transportation to shopping, doctor visits, entertainment.
Food cost may be reduced as most include some meals.
Travel might be easier. Some may organize trips and some CCC have "sister" communities where you might be able to get accommodations for less than what a hotel may cost.
And getting used to the community before you actually need the help makes everyone more comfortable. And having the availability of having Rehab or Skilled Nursing available if it is needed without having to leave "home" helps make recovering easier.

I would find a community that you would consider and take a tour. Maybe even ask if you can stay a weekend so you can get a feel for what life is like there.
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Reply to Grandma1954
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Your idea of moving to the CCRC is a good one, and since your husband has a number of medical issues, moving sooner will be better for both of you. Living in a CCRC has been great for my mom, and us (her children). My husband and I plan on moving there in the future.

Since your husband's short term memory is now gone (which means he's likely progressed beyond MCI and into dementia), it will be fruitless to convince him of anything, because he won't remember it.

The only thing he will remember is the emotion of whatever he's hearing you say, so make sure whatever "story" you tell him is something more agreeable to him. Either blaming it on you, saving money, etc.

When we moved mom to memory care, we told her "the doctor wants you to stay here for a short time for some extra PT". This worked for her, because she really liked PT, and we said "it won't be forever". She's been there 6 months and is doing so much better. She's even made friends in MC. She plays music and proudly shows us her art projects - something she would've been too self-conscious to do before dementia. With no short-term memory, she has no concept of time, so it works in our favor.

It's up to you to get this done without his help or buy-in. You're making this decision for the best for both of you.
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Reply to Dogwood63
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I like the making it all about you. Whatever ailment you may (or may not!) have — arthritis, etc— say your doctor says you can no longer live where you are and need more support and the hiring aides is not enough.

However, if he forms no new memories, won’t he forget whatever explanations you offer? If so, I would just plow ahead with making arrangements. Offer whatever at the time, and move.

Another thought — could you say the place where you are now is too expensive, not covered by your insurance, or something like that?

Will he forget the current situation soon enough as well, once familiar with the new place?

Once you have chosen the place, identify anything he might like, no matter how small, and emphasize that. Do they have a goldfish aquarium? A game room? Ice cream on Fridays? Whatever might appeal to him. This helped when my dad had to move and didn’t want to.
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Reply to Suzy23
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My guess is that you won’t ‘convince him’, so long as he thinks he is the one who has the deciding vote.

My suggestion would be that you go ahead and organise it for yourself, and then tell him that you are going NOW. Tell him that he can hire someone to live in with him if he wants to stay put. Then leave – even if you simply go for a hotel break and just fake that it’s going to be permanent. Say that you need time to ‘settle in’, and that you won’t go back to see him until he has organised his live-in arrangement.

Being left to organise himself may at least shake his idea that he has the whip hand in all this.
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Reply to MargaretMcKen
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PeggySue2020 2 hours ago
He can’t make new memories, Margaret. He can’t be left alone any more than a toddler can.
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Is there a POA over financial and healthcare decisions, hopefully a generation younger than you, who could help in the event hubby can’t be convinced? You may need someone else on your side as he likely has anosognosia, rendering it impossible for him to cooperate. There comes a time when decisions will need to be made in both of your best interests despite his protests. I’m sorry you’re in this place and wish you peace
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Reply to Daughterof1930
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waytomisery 14 hours ago
I almost asked in my post if there was a POA. Then I remembered that my sister with anosognosia and dementia argued her way out of AL in a board and care home and returned back to living with her son in his home . This was because of a spineless neurologist , who said she had the right to go back home if she wanted . She refuses a companion at home for supervision while her son is at work. Her son ( who is POA when a doctor chooses to listen to him ) is back to square one again .
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Your friend has a good idea.
Also tell him it’s too expensive to hire a live in and it’s best to move now before a real emergency makes it necessary . Also that it’s best to move now before the price goes too high.

Convincing him still may not work though. He thinks there is nothing wrong.
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